Barriers to and enablers of the promotion of patient and family participation in primary healthcare nursing in Brazil, Germany and Spain: A qualitative study

Cuidador familiar; Educació del pacient; Participació del pacient

Detalles Bibliográficos
Autores: Heumann, Marcus, Röhnsch, Gundula, Zabaleta-del-Olmo, Edurne, Toso, Beatriz, Giovanella, Ligia, Hämel, Kerstin
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2023
País:España
Institución:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)
Repositorio:Recercat. Dipósit de la Recerca de Catalunya
OAI Identifier:oai:recercat.cat:11351/10353
Acceso en línea:https://hdl.handle.net/11351/10353
http://hdl.handle.net/11351/10353
Access Level:acceso abierto
Palabra clave:Malalts crònics
Atenció centrada en el pacient
Infermeria en l'atenció primària
DISEASES::Pathological Conditions, Signs and Symptoms::Pathologic Processes::Disease Attributes::Chronic Disease
PUBLIC HEALTH::Health Care (Public Health)::Delivery of Health Care::Comprehensive Health Care::Primary Health Care::Patient-Centered Care
ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Therapeutics::Patient Care::Nursing Care::Primary Care Nursing
ENFERMEDADES::afecciones patológicas, signos y síntomas::procesos patológicos::atributos de la enfermedad::enfermedad crónica
SALUD PÚBLICA::atención a la salud (salud pública)::prestación sanitaria::atención integral de salud::atención primaria de la salud::atención centrada en el paciente
TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::terapéutica::asistencia al paciente::asistencia de enfermería::enfermería de atención primaria
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network_name_str España
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dc.title.none.fl_str_mv Barriers to and enablers of the promotion of patient and family participation in primary healthcare nursing in Brazil, Germany and Spain: A qualitative study
title Barriers to and enablers of the promotion of patient and family participation in primary healthcare nursing in Brazil, Germany and Spain: A qualitative study
spellingShingle Barriers to and enablers of the promotion of patient and family participation in primary healthcare nursing in Brazil, Germany and Spain: A qualitative study
Heumann, Marcus
Malalts crònics
Atenció centrada en el pacient
Infermeria en l'atenció primària
DISEASES::Pathological Conditions, Signs and Symptoms::Pathologic Processes::Disease Attributes::Chronic Disease
PUBLIC HEALTH::Health Care (Public Health)::Delivery of Health Care::Comprehensive Health Care::Primary Health Care::Patient-Centered Care
ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Therapeutics::Patient Care::Nursing Care::Primary Care Nursing
ENFERMEDADES::afecciones patológicas, signos y síntomas::procesos patológicos::atributos de la enfermedad::enfermedad crónica
SALUD PÚBLICA::atención a la salud (salud pública)::prestación sanitaria::atención integral de salud::atención primaria de la salud::atención centrada en el paciente
TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::terapéutica::asistencia al paciente::asistencia de enfermería::enfermería de atención primaria
title_short Barriers to and enablers of the promotion of patient and family participation in primary healthcare nursing in Brazil, Germany and Spain: A qualitative study
title_full Barriers to and enablers of the promotion of patient and family participation in primary healthcare nursing in Brazil, Germany and Spain: A qualitative study
title_fullStr Barriers to and enablers of the promotion of patient and family participation in primary healthcare nursing in Brazil, Germany and Spain: A qualitative study
title_full_unstemmed Barriers to and enablers of the promotion of patient and family participation in primary healthcare nursing in Brazil, Germany and Spain: A qualitative study
title_sort Barriers to and enablers of the promotion of patient and family participation in primary healthcare nursing in Brazil, Germany and Spain: A qualitative study
dc.creator.none.fl_str_mv Heumann, Marcus
Röhnsch, Gundula
Zabaleta-del-Olmo, Edurne
Toso, Beatriz
Giovanella, Ligia
Hämel, Kerstin
author Heumann, Marcus
author_facet Heumann, Marcus
Röhnsch, Gundula
Zabaleta-del-Olmo, Edurne
Toso, Beatriz
Giovanella, Ligia
Hämel, Kerstin
author_role author
author2 Röhnsch, Gundula
Zabaleta-del-Olmo, Edurne
Toso, Beatriz
Giovanella, Ligia
Hämel, Kerstin
author2_role author
author
author
author
author
dc.contributor.none.fl_str_mv [Heumann M, Hämel K] Department of Health Services Research and Nursing Science, School of Public Health, Bielefeld University, Bielefeld, Germany. [Röhnsch G] Division Qualitative Social and Education Research, Department of Education and Psychology, Freie Universität Berlin, Berlin, Germany. [Zabaleta del Olmo E] Fundació Institut Universitari per a la Recerca a l'Atenció Primària de Salut Jordi Gol I Gurina (IDIAPJGol), Barcelona, Spain. Nursing Department, University of Girona, Girona, Spain. Primary Care Directorate, Barcelona Regional Management, Institut Català de la Salut, Barcelona, Spain. [Toso B] Center of Biological and Health Sciences, Western Paraná State University—UNIOESTE, Cascavel, Brazil. [Giovanella L] Department for Health Administration and Planning, National School of Public Health, Fundação Oswaldo Cruz, Rio de Janeiro, Brazil
IDIAP Jordi Gol
dc.subject.none.fl_str_mv Malalts crònics
Atenció centrada en el pacient
Infermeria en l'atenció primària
DISEASES::Pathological Conditions, Signs and Symptoms::Pathologic Processes::Disease Attributes::Chronic Disease
PUBLIC HEALTH::Health Care (Public Health)::Delivery of Health Care::Comprehensive Health Care::Primary Health Care::Patient-Centered Care
ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Therapeutics::Patient Care::Nursing Care::Primary Care Nursing
ENFERMEDADES::afecciones patológicas, signos y síntomas::procesos patológicos::atributos de la enfermedad::enfermedad crónica
SALUD PÚBLICA::atención a la salud (salud pública)::prestación sanitaria::atención integral de salud::atención primaria de la salud::atención centrada en el paciente
TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::terapéutica::asistencia al paciente::asistencia de enfermería::enfermería de atención primaria
topic Malalts crònics
Atenció centrada en el pacient
Infermeria en l'atenció primària
DISEASES::Pathological Conditions, Signs and Symptoms::Pathologic Processes::Disease Attributes::Chronic Disease
PUBLIC HEALTH::Health Care (Public Health)::Delivery of Health Care::Comprehensive Health Care::Primary Health Care::Patient-Centered Care
ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Therapeutics::Patient Care::Nursing Care::Primary Care Nursing
ENFERMEDADES::afecciones patológicas, signos y síntomas::procesos patológicos::atributos de la enfermedad::enfermedad crónica
SALUD PÚBLICA::atención a la salud (salud pública)::prestación sanitaria::atención integral de salud::atención primaria de la salud::atención centrada en el paciente
TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::terapéutica::asistencia al paciente::asistencia de enfermería::enfermería de atención primaria
description Cuidador familiar; Educació del pacient; Participació del pacient
publishDate 2023
dc.date.none.fl_str_mv 2023
2023
2023
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://hdl.handle.net/11351/10353
http://hdl.handle.net/11351/10353
url https://hdl.handle.net/11351/10353
http://hdl.handle.net/11351/10353
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.relation.none.fl_str_mv Health expectations;
https://doi.org/10.1111/hex.13843
dc.rights.none.fl_str_mv Attribution-NonCommercial-ShareAlike 4.0 International
http://creativecommons.org/licenses/by-nc-sa/4.0/
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Attribution-NonCommercial-ShareAlike 4.0 International
http://creativecommons.org/licenses/by-nc-sa/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Wiley
publisher.none.fl_str_mv Wiley
dc.source.none.fl_str_mv Scientia
reponame:Recercat. Dipósit de la Recerca de Catalunya
instname:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)
instname_str Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)
reponame_str Recercat. Dipósit de la Recerca de Catalunya
collection Recercat. Dipósit de la Recerca de Catalunya
repository.name.fl_str_mv
repository.mail.fl_str_mv
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spelling Barriers to and enablers of the promotion of patient and family participation in primary healthcare nursing in Brazil, Germany and Spain: A qualitative studyHeumann, MarcusRöhnsch, GundulaZabaleta-del-Olmo, EdurneToso, BeatrizGiovanella, LigiaHämel, KerstinMalalts crònicsAtenció centrada en el pacientInfermeria en l'atenció primàriaDISEASES::Pathological Conditions, Signs and Symptoms::Pathologic Processes::Disease Attributes::Chronic DiseasePUBLIC HEALTH::Health Care (Public Health)::Delivery of Health Care::Comprehensive Health Care::Primary Health Care::Patient-Centered CareANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Therapeutics::Patient Care::Nursing Care::Primary Care NursingENFERMEDADES::afecciones patológicas, signos y síntomas::procesos patológicos::atributos de la enfermedad::enfermedad crónicaSALUD PÚBLICA::atención a la salud (salud pública)::prestación sanitaria::atención integral de salud::atención primaria de la salud::atención centrada en el pacienteTÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::terapéutica::asistencia al paciente::asistencia de enfermería::enfermería de atención primariaCuidador familiar; Educació del pacient; Participació del pacientCuidador familiar; Educación del paciente; Participación del pacienteFamily Caregiver; Patient education; Patient participationBackground: Most health systems are insufficiently prepared to promote the participation of chronically ill patients in their care. Strong primary health care (PHC) strengthens patients' resources and thus promotes their participation. The tasks of providing continuous care to people with chronic diseases and promoting self‐ management are the responsibility of PHC nurses. Recent research assessing enablers of or barriers to nurses' efforts to support patients' participation has mostly not considered the special situation of patients with chronic diseases or focused on the PHC setting. Objective: To investigate enablers of and barriers to PHC nurses' efforts to promote the participation of chronically ill patients in their care. Methods: We interviewed 34 practicing PHC nurses and 23 key informants with advanced knowledge of PHC nursing practice in Brazil, Germany and Spain. The data was analyzed using thematic coding. Results: We identified four categories of barriers and enablers. (1) Establishing bonds with patients: Interviewees emphasized that understanding patients' views and behaviours is important for PHC nurses. (2) Cooperation with relatives and families: Good relationships with families are fundamental, however conflicts within families could challenge PHC nurses efforts to strengthen participation. (3) Communication and cooperation within PHC teams: PHC nurses see Cooperative team structures as a potential enabler, while the dominance of a ‘biomedical’ approach to patient care is seen as a barrier. (4) Work environment: Interviewees agreed that increased workload is a barrier to patient participation. Discussion and Conclusions: Supporting patient participation should be acknowledged as an important responsibility for nurses by general practitioners and PHC planners. PHC nurses should be trained in communicative competence when discussing participation with chronically ill patients. Interprofessional education could strengthen other professionals' understanding of patient participation as a nursing task. Patient or Public Contribution: This study is part of a research project associated with the research network ‘forges: User‐oriented care: Promotion of health in the context of chronic diseases and care dependency’. The study's focus and provisional results were discussed continuously with partners in health and social care practice and presented to and discussed with the public at two conferences in which patient representatives, professionals and researchers participated.Wiley[Heumann M, Hämel K] Department of Health Services Research and Nursing Science, School of Public Health, Bielefeld University, Bielefeld, Germany. [Röhnsch G] Division Qualitative Social and Education Research, Department of Education and Psychology, Freie Universität Berlin, Berlin, Germany. [Zabaleta del Olmo E] Fundació Institut Universitari per a la Recerca a l'Atenció Primària de Salut Jordi Gol I Gurina (IDIAPJGol), Barcelona, Spain. Nursing Department, University of Girona, Girona, Spain. Primary Care Directorate, Barcelona Regional Management, Institut Català de la Salut, Barcelona, Spain. [Toso B] Center of Biological and Health Sciences, Western Paraná State University—UNIOESTE, Cascavel, Brazil. [Giovanella L] Department for Health Administration and Planning, National School of Public Health, Fundação Oswaldo Cruz, Rio de Janeiro, BrazilIDIAP Jordi Gol202320232023info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://hdl.handle.net/11351/10353http://hdl.handle.net/11351/10353Scientiareponame:Recercat. Dipósit de la Recerca de Catalunyainstname:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)InglésHealth expectations;https://doi.org/10.1111/hex.13843Attribution-NonCommercial-ShareAlike 4.0 Internationalhttp://creativecommons.org/licenses/by-nc-sa/4.0/info:eu-repo/semantics/openAccessoai:recercat.cat:11351/103532026-05-29T05:05:01Z
score 15,811543

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