A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study

Background: health care policies in many countries aim to enable people with dementia to live in their own homes as long as possible. However, at some point during the disease the needs of a significant number of people with dementia cannot be appropriately met at home and institutional care is requ...

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Autores: Verbeek, Hilde, Meyer, Gabriele, Leino-Kilpi, Helena, Zabalegui Yárnoz, Adelaida, Rahm Hallberg, Ingalill, Saks, Kai, Soto, Maria Eugenia, Challis, David, Sauerland, Dirk, Hamers, Jan P. H., RightTimePlaceCare Consortium
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2012
País:España
Institución:Universidad de Barcelona
Repositorio:Dipòsit Digital de la UB
OAI Identifier:oai:diposit.ub.edu:2445/132005
Acceso en línea:https://hdl.handle.net/2445/132005
Access Level:acceso abierto
Palabra clave:Demència
Atenció domiciliària
Assistència institucional
Dementia
Home care services
Institutional care
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spelling A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare studyVerbeek, HildeMeyer, GabrieleLeino-Kilpi, HelenaZabalegui Yárnoz, AdelaidaRahm Hallberg, IngalillSaks, KaiSoto, Maria EugeniaChallis, DavidSauerland, DirkHamers, Jan P. H.RightTimePlaceCare ConsortiumDemènciaAtenció domiciliàriaAssistència institucionalDementiaHome care servicesInstitutional careBackground: health care policies in many countries aim to enable people with dementia to live in their own homes as long as possible. However, at some point during the disease the needs of a significant number of people with dementia cannot be appropriately met at home and institutional care is required. Evidence as to best practice strategies enabling people with dementia to live at home as long as possible and also identifying the right time to trigger admission to a long-term nursing care facility is therefore urgently required. The current paper presents the rationale and methods of a study generating primary data for best-practice development in the transition from home towards institutional nursing care for people with dementia and their informal caregivers. The study has two main objectives: 1) investigate country-specific factors influencing institutionalization and 2) investigate the circumstances of people with dementia and their informal caregivers in eight European countries. Additionally, data for economic evaluation purposes are being collected. Methods/design: this paper describes a prospective study, conducted in eight European countries (Estonia, Finland, France, Germany, Netherlands, Sweden, Spain, United Kingdom). A baseline assessment and follow-up measurement after 3 months will be performed. Two groups of people with dementia and their informal caregivers will be included: 1) newly admitted to institutional long-term nursing care facilities; and 2) receiving professional long-term home care, and being at risk for institutionalization. Data will be collected on outcomes for people with dementia (e.g. quality of life, quality of care), informal caregivers (e.g. caregiver burden, quality of life) and costs (e.g. resource utilization). Statistical analyses consist of descriptive and multivariate regression techniques and cross-country comparisons. Discussion: the current study, which is part of a large European project 'RightTimePlaceCare', generates primary data on outcomes and costs of long-term nursing care for people with dementia and their informal caregivers, specifically focusing on the transition from home towards institutional care. Together with data collected in three other work packages, knowledge gathered in this study will be used to inform and empower patients, professionals, policy and related decision makers to manage and improve health and social dementia care services.BioMed Central2012info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://hdl.handle.net/2445/132005Articles publicats en revistes (Infermeria de Salut Pública, Salut mental i Maternoinfantil)reponame:Dipòsit Digital de la UBinstname:Universidad de BarcelonaInglésReproducció del document publicat a: https://doi.org/10.1186/1471-2458-12-68BMC Public Health, 2012, vol. 12, num. 68https://doi.org/10.1186/1471-2458-12-68info:eu-repo/grantAgreement/EC/FP7/242153cc-by (c) Verbeek, Hilde et al., 2012http://creativecommons.org/licenses/by/3.0/esinfo:eu-repo/semantics/openAccessoai:diposit.ub.edu:2445/1320052026-05-27T06:46:51Z
dc.title.none.fl_str_mv A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study
title A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study
spellingShingle A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study
Verbeek, Hilde
Demència
Atenció domiciliària
Assistència institucional
Dementia
Home care services
Institutional care
title_short A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study
title_full A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study
title_fullStr A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study
title_full_unstemmed A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study
title_sort A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study
dc.creator.none.fl_str_mv Verbeek, Hilde
Meyer, Gabriele
Leino-Kilpi, Helena
Zabalegui Yárnoz, Adelaida
Rahm Hallberg, Ingalill
Saks, Kai
Soto, Maria Eugenia
Challis, David
Sauerland, Dirk
Hamers, Jan P. H.
RightTimePlaceCare Consortium
author Verbeek, Hilde
author_facet Verbeek, Hilde
Meyer, Gabriele
Leino-Kilpi, Helena
Zabalegui Yárnoz, Adelaida
Rahm Hallberg, Ingalill
Saks, Kai
Soto, Maria Eugenia
Challis, David
Sauerland, Dirk
Hamers, Jan P. H.
RightTimePlaceCare Consortium
author_role author
author2 Meyer, Gabriele
Leino-Kilpi, Helena
Zabalegui Yárnoz, Adelaida
Rahm Hallberg, Ingalill
Saks, Kai
Soto, Maria Eugenia
Challis, David
Sauerland, Dirk
Hamers, Jan P. H.
RightTimePlaceCare Consortium
author2_role author
author
author
author
author
author
author
author
author
author
dc.subject.none.fl_str_mv Demència
Atenció domiciliària
Assistència institucional
Dementia
Home care services
Institutional care
topic Demència
Atenció domiciliària
Assistència institucional
Dementia
Home care services
Institutional care
description Background: health care policies in many countries aim to enable people with dementia to live in their own homes as long as possible. However, at some point during the disease the needs of a significant number of people with dementia cannot be appropriately met at home and institutional care is required. Evidence as to best practice strategies enabling people with dementia to live at home as long as possible and also identifying the right time to trigger admission to a long-term nursing care facility is therefore urgently required. The current paper presents the rationale and methods of a study generating primary data for best-practice development in the transition from home towards institutional nursing care for people with dementia and their informal caregivers. The study has two main objectives: 1) investigate country-specific factors influencing institutionalization and 2) investigate the circumstances of people with dementia and their informal caregivers in eight European countries. Additionally, data for economic evaluation purposes are being collected. Methods/design: this paper describes a prospective study, conducted in eight European countries (Estonia, Finland, France, Germany, Netherlands, Sweden, Spain, United Kingdom). A baseline assessment and follow-up measurement after 3 months will be performed. Two groups of people with dementia and their informal caregivers will be included: 1) newly admitted to institutional long-term nursing care facilities; and 2) receiving professional long-term home care, and being at risk for institutionalization. Data will be collected on outcomes for people with dementia (e.g. quality of life, quality of care), informal caregivers (e.g. caregiver burden, quality of life) and costs (e.g. resource utilization). Statistical analyses consist of descriptive and multivariate regression techniques and cross-country comparisons. Discussion: the current study, which is part of a large European project 'RightTimePlaceCare', generates primary data on outcomes and costs of long-term nursing care for people with dementia and their informal caregivers, specifically focusing on the transition from home towards institutional care. Together with data collected in three other work packages, knowledge gathered in this study will be used to inform and empower patients, professionals, policy and related decision makers to manage and improve health and social dementia care services.
publishDate 2012
dc.date.none.fl_str_mv 2012
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://hdl.handle.net/2445/132005
url https://hdl.handle.net/2445/132005
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.relation.none.fl_str_mv Reproducció del document publicat a: https://doi.org/10.1186/1471-2458-12-68
BMC Public Health, 2012, vol. 12, num. 68
https://doi.org/10.1186/1471-2458-12-68
info:eu-repo/grantAgreement/EC/FP7/242153
dc.rights.none.fl_str_mv cc-by (c) Verbeek, Hilde et al., 2012
http://creativecommons.org/licenses/by/3.0/es
info:eu-repo/semantics/openAccess
rights_invalid_str_mv cc-by (c) Verbeek, Hilde et al., 2012
http://creativecommons.org/licenses/by/3.0/es
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv BioMed Central
publisher.none.fl_str_mv BioMed Central
dc.source.none.fl_str_mv Articles publicats en revistes (Infermeria de Salut Pública, Salut mental i Maternoinfantil)
reponame:Dipòsit Digital de la UB
instname:Universidad de Barcelona
instname_str Universidad de Barcelona
reponame_str Dipòsit Digital de la UB
collection Dipòsit Digital de la UB
repository.name.fl_str_mv
repository.mail.fl_str_mv
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score 15,300724

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