Tensions and Escapes in Independent Living Infrastructures for People With Disabilities Under COVID-19

The COVID-19 pandemic highlighted the structural deficiencies of residential care homes. In this context, living arrangements based on the independent living paradigm emerged as more resilient care infrastructures in terms of preserving life. But what kind of lives have they preserved, and who has d...

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Detalles Bibliográficos
Autores: Moyà-Köhler, Joan|||0000-0002-5746-6958, García-Santesmases Fernández, Andrea|||0000-0002-8234-7782, Farré Montalà, Lluvi
Tipo de recurso: artículo
Fecha de publicación:2023
País:España
Institución:Universitat Autònoma de Barcelona
Repositorio:Dipòsit Digital de Documents de la UAB
Idioma:inglés
OAI Identifier:oai:ddd.uab.cat:288909
Acceso en línea:https://ddd.uab.cat/record/288909
https://dx.doi.org/urn:doi:10.1177/12063312231161187
Access Level:acceso abierto
Palabra clave:Disabilities
Learning Disabilities
Independent Living
Covid-19
STS
Care Infrastructures
Descripción
Sumario:The COVID-19 pandemic highlighted the structural deficiencies of residential care homes. In this context, living arrangements based on the independent living paradigm emerged as more resilient care infrastructures in terms of preserving life. But what kind of lives have they preserved, and who has decided what forms those lives took? Drawing on an ethnographic study of two care infrastructures for people with physical and intellectual disabilities living independently in Barcelona, the present study illustrates how the pandemic tensioned and unleashed escapes within these two services, revealing them as postinstitutions working under logics of bureaucratization and hospitalization. This in-depth study allows us to delve deeper into the constraints that these postinstitutionalization models present, at the time that explores the possibilities these projects present for continuing to work toward the promotion of self-organization and full participation of people with disabilities in the becoming of their life projects.