"What I was and what I am": a qualitative study of survivors' experience of urological cancer
Purpose: Most qualitative studies do not explore experience throughout the urologic cancer survival trajectory. Moreover, the evidence of the experience of cancer survivors that focuses on the contextual aspects of culture is scarce in oncology literature. This study aimed to analyze the survival ex...
| Autores: | , , , , |
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| Tipo de recurso: | artículo |
| Estado: | Versión aceptada para publicación |
| Fecha de publicación: | 2020 |
| País: | España |
| Institución: | Universidad Pública de Navarra |
| Repositorio: | Academica-e. Repositorio Institucional de la Universidad Pública de Navarra |
| OAI Identifier: | oai:academica-e.unavarra.es:2454/52917 |
| Acceso en línea: | https://hdl.handle.net/2454/52917 |
| Access Level: | acceso abierto |
| Palabra clave: | Anthropology Medical Nursing research Qualitative research Oncology nursing Survival Urologic neoplasms |
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"What I was and what I am": a qualitative study of survivors' experience of urological cancerNeris, Rhyquelle RhibnaLeite, Ana Carolina Andrade BiaggiNascimento, LucilaGarcía Vivar, CristinaZago, Márcia Maria FontãoAnthropologyMedicalNursing researchQualitative researchOncology nursingSurvivalUrologic neoplasmsPurpose: Most qualitative studies do not explore experience throughout the urologic cancer survival trajectory. Moreover, the evidence of the experience of cancer survivors that focuses on the contextual aspects of culture is scarce in oncology literature. This study aimed to analyze the survival experience of urological cancer from the perspective of men. Method: This was a narrative research based on the concepts of culture derived from the interpretative medical anthropologic approach. Semi-structured interviews were conducted with 10 male survivors of urological cancer at different survival seasons. Seven participants agreed to a second interview, which resulted in 17 interviews. The data were analyzed using a five-phase thematic analysis approach. The findings are presented as narrative syntheses. The standards for reporting qualitative research (SPQR) was used in this study. Results: Two narrative syntheses were constructed: "The journey of urological cancer: discovering oneself as a survivor" and "What I was and what I am today": the disruption on the body and life. The narrative synthesis shows that survivors undergo transitions of identity from being healthy men to wrecked men. The survivors tried to present themselves as normal men to keep their masculinity intact. However, the experience of survival constituted a process of liminality and biographical disruption. Conclusion: The experience of surviving urological cancer has highlighted the physical, emotional, and social challenges experienced by these male survivors. It is recommended to oncology nurses that nursing care should be planned along survival seasons considering the survivor's individual and subjective experiences.This study was supported by the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - Brasil (CAPES), Finance code 001, and the Conselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq), Brasil, [Grant number: 305368/2014-1].ElsevierCiencias de la SaludOsasun ZientziakInstitute of Smart Cities - ISC2020info:eu-repo/semantics/articleinfo:eu-repo/semantics/acceptedVersionapplication/pdfhttps://hdl.handle.net/2454/52917reponame:Academica-e. Repositorio Institucional de la Universidad Pública de Navarrainstname:Universidad Pública de NavarraInglés© 2019 Elsevier Ltd. This manuscript version is made available under the CC-BY-NC-ND 4.0.https://creativecommons.org/licenses/by-nc-nd/4.0/info:eu-repo/semantics/openAccessoai:academica-e.unavarra.es:2454/529172026-06-17T12:41:47Z |
| dc.title.none.fl_str_mv |
"What I was and what I am": a qualitative study of survivors' experience of urological cancer |
| title |
"What I was and what I am": a qualitative study of survivors' experience of urological cancer |
| spellingShingle |
"What I was and what I am": a qualitative study of survivors' experience of urological cancer Neris, Rhyquelle Rhibna Anthropology Medical Nursing research Qualitative research Oncology nursing Survival Urologic neoplasms |
| title_short |
"What I was and what I am": a qualitative study of survivors' experience of urological cancer |
| title_full |
"What I was and what I am": a qualitative study of survivors' experience of urological cancer |
| title_fullStr |
"What I was and what I am": a qualitative study of survivors' experience of urological cancer |
| title_full_unstemmed |
"What I was and what I am": a qualitative study of survivors' experience of urological cancer |
| title_sort |
"What I was and what I am": a qualitative study of survivors' experience of urological cancer |
| dc.creator.none.fl_str_mv |
Neris, Rhyquelle Rhibna Leite, Ana Carolina Andrade Biaggi Nascimento, Lucila García Vivar, Cristina Zago, Márcia Maria Fontão |
| author |
Neris, Rhyquelle Rhibna |
| author_facet |
Neris, Rhyquelle Rhibna Leite, Ana Carolina Andrade Biaggi Nascimento, Lucila García Vivar, Cristina Zago, Márcia Maria Fontão |
| author_role |
author |
| author2 |
Leite, Ana Carolina Andrade Biaggi Nascimento, Lucila García Vivar, Cristina Zago, Márcia Maria Fontão |
| author2_role |
author author author author |
| dc.contributor.none.fl_str_mv |
Ciencias de la Salud Osasun Zientziak Institute of Smart Cities - ISC |
| dc.subject.none.fl_str_mv |
Anthropology Medical Nursing research Qualitative research Oncology nursing Survival Urologic neoplasms |
| topic |
Anthropology Medical Nursing research Qualitative research Oncology nursing Survival Urologic neoplasms |
| description |
Purpose: Most qualitative studies do not explore experience throughout the urologic cancer survival trajectory. Moreover, the evidence of the experience of cancer survivors that focuses on the contextual aspects of culture is scarce in oncology literature. This study aimed to analyze the survival experience of urological cancer from the perspective of men. Method: This was a narrative research based on the concepts of culture derived from the interpretative medical anthropologic approach. Semi-structured interviews were conducted with 10 male survivors of urological cancer at different survival seasons. Seven participants agreed to a second interview, which resulted in 17 interviews. The data were analyzed using a five-phase thematic analysis approach. The findings are presented as narrative syntheses. The standards for reporting qualitative research (SPQR) was used in this study. Results: Two narrative syntheses were constructed: "The journey of urological cancer: discovering oneself as a survivor" and "What I was and what I am today": the disruption on the body and life. The narrative synthesis shows that survivors undergo transitions of identity from being healthy men to wrecked men. The survivors tried to present themselves as normal men to keep their masculinity intact. However, the experience of survival constituted a process of liminality and biographical disruption. Conclusion: The experience of surviving urological cancer has highlighted the physical, emotional, and social challenges experienced by these male survivors. It is recommended to oncology nurses that nursing care should be planned along survival seasons considering the survivor's individual and subjective experiences. |
| publishDate |
2020 |
| dc.date.none.fl_str_mv |
2020 |
| dc.type.none.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/acceptedVersion |
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article |
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acceptedVersion |
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https://hdl.handle.net/2454/52917 |
| url |
https://hdl.handle.net/2454/52917 |
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Inglés |
| language_invalid_str_mv |
Inglés |
| dc.rights.none.fl_str_mv |
© 2019 Elsevier Ltd. This manuscript version is made available under the CC-BY-NC-ND 4.0. https://creativecommons.org/licenses/by-nc-nd/4.0/ info:eu-repo/semantics/openAccess |
| rights_invalid_str_mv |
© 2019 Elsevier Ltd. This manuscript version is made available under the CC-BY-NC-ND 4.0. https://creativecommons.org/licenses/by-nc-nd/4.0/ |
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openAccess |
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application/pdf |
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Elsevier |
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Elsevier |
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reponame:Academica-e. Repositorio Institucional de la Universidad Pública de Navarra instname:Universidad Pública de Navarra |
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Universidad Pública de Navarra |
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Academica-e. Repositorio Institucional de la Universidad Pública de Navarra |
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Academica-e. Repositorio Institucional de la Universidad Pública de Navarra |
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