Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients.

The complexity of palliative care means that the emotional distress and burden that primary family caregivers suffer under can be particularly high. The objective of this study was to determine the level of burden endured by these primary family caregivers and to identify the variables that predict...

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Detalhes bibliográficos
Autores: Perpiñá-Galvañ J, Orts-Beneito N, Fernández-Alcántara M, García-Sanjuán S, García-Caro MP, Cabañero-Martínez MJ
Formato: artículo
Estado:Versión publicada
Fecha de publicación:2019
País:España
Recursos:Instituto de Investigación Biomédica y Sanitaria de Alicante (ISABIAL)
Repositorio:r-ISABIAL. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica y Sanitaria de Alicante
OAI Identifier:oai:isabial.fundanetsuite.com:p5065
Acesso em linha:https://isabial.portalinvestigacion.com/publicaciones5065
Access Level:acceso abierto
Palavra-chave:anxiety, burden, caregiver, depression, palliative care, quality of life
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spelling Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients.Perpiñá-Galvañ JOrts-Beneito NFernández-Alcántara MGarcía-Sanjuán SGarcía-Caro MPCabañero-Martínez MJanxiety, burden, caregiver, depression, palliative care, quality of lifeThe complexity of palliative care means that the emotional distress and burden that primary family caregivers suffer under can be particularly high. The objective of this study was to determine the level of burden endured by these primary family caregivers and to identify the variables that predict it in the caregiving relatives of people who require home-based palliative care. A descriptive-correlational cross-sectional study was conducted. Socio-demographic and clinical data were collected from caregivers through a self-administered questionnaire that included questions from the 12-Item Short Form Health Survey (SF-12), Zarit Caregiver Burden Interview (ZBI), Hospital Anxiety and Depression Scale (HADS), Brief Resilient Coping Scale (BRCS), Post Traumatic Growth Inventory (PTGI), and Fatigue Assessment Scale (FAS). A total of 77 caregivers participated; 66.2% were women, and the mean age was 61.5 years. Most (62.3%) were providing care to cancer patients. From among these data, the presence of anxiety as a clinical problem (48.1%), a high average fatigue score (FAS) of 23.0 ( SD = 8.5), and the prevalence of intense overload (41.6%) stood out. We found statistically significant correlations between the variables of burden, fatigue, post-traumatic growth, anxiety, and depression, with the latter two being the main predictive variables of burden. In addition, caregiver burden was associated with a worsening of health. Identifying the factors that influence the appearance of overburden will allow the specific needs of careers to be assessed in order to offer them emotional support within the healthcare environment.MDPI2019info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttps://isabial.portalinvestigacion.com/publicaciones5065International Journal of Environmental Research and Public HealthISSN: 16617827ISSNe: 16604601reponame:r-ISABIAL. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica y Sanitaria de Alicanteinstname:Instituto de Investigación Biomédica y Sanitaria de Alicante (ISABIAL)Inglésinfo:eu-repo/semantics/openAccessoai:isabial.fundanetsuite.com:p50652026-06-12T10:20:37Z
dc.title.none.fl_str_mv Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients.
title Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients.
spellingShingle Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients.
Perpiñá-Galvañ J
anxiety, burden, caregiver, depression, palliative care, quality of life
title_short Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients.
title_full Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients.
title_fullStr Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients.
title_full_unstemmed Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients.
title_sort Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients.
dc.creator.none.fl_str_mv Perpiñá-Galvañ J
Orts-Beneito N
Fernández-Alcántara M
García-Sanjuán S
García-Caro MP
Cabañero-Martínez MJ
author Perpiñá-Galvañ J
author_facet Perpiñá-Galvañ J
Orts-Beneito N
Fernández-Alcántara M
García-Sanjuán S
García-Caro MP
Cabañero-Martínez MJ
author_role author
author2 Orts-Beneito N
Fernández-Alcántara M
García-Sanjuán S
García-Caro MP
Cabañero-Martínez MJ
author2_role author
author
author
author
author
dc.subject.none.fl_str_mv anxiety, burden, caregiver, depression, palliative care, quality of life
topic anxiety, burden, caregiver, depression, palliative care, quality of life
description The complexity of palliative care means that the emotional distress and burden that primary family caregivers suffer under can be particularly high. The objective of this study was to determine the level of burden endured by these primary family caregivers and to identify the variables that predict it in the caregiving relatives of people who require home-based palliative care. A descriptive-correlational cross-sectional study was conducted. Socio-demographic and clinical data were collected from caregivers through a self-administered questionnaire that included questions from the 12-Item Short Form Health Survey (SF-12), Zarit Caregiver Burden Interview (ZBI), Hospital Anxiety and Depression Scale (HADS), Brief Resilient Coping Scale (BRCS), Post Traumatic Growth Inventory (PTGI), and Fatigue Assessment Scale (FAS). A total of 77 caregivers participated; 66.2% were women, and the mean age was 61.5 years. Most (62.3%) were providing care to cancer patients. From among these data, the presence of anxiety as a clinical problem (48.1%), a high average fatigue score (FAS) of 23.0 ( SD = 8.5), and the prevalence of intense overload (41.6%) stood out. We found statistically significant correlations between the variables of burden, fatigue, post-traumatic growth, anxiety, and depression, with the latter two being the main predictive variables of burden. In addition, caregiver burden was associated with a worsening of health. Identifying the factors that influence the appearance of overburden will allow the specific needs of careers to be assessed in order to offer them emotional support within the healthcare environment.
publishDate 2019
dc.date.none.fl_str_mv 2019
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://isabial.portalinvestigacion.com/publicaciones5065
url https://isabial.portalinvestigacion.com/publicaciones5065
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.publisher.none.fl_str_mv MDPI
publisher.none.fl_str_mv MDPI
dc.source.none.fl_str_mv International Journal of Environmental Research and Public Health
ISSN: 16617827
ISSNe: 16604601
reponame:r-ISABIAL. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica y Sanitaria de Alicante
instname:Instituto de Investigación Biomédica y Sanitaria de Alicante (ISABIAL)
instname_str Instituto de Investigación Biomédica y Sanitaria de Alicante (ISABIAL)
reponame_str r-ISABIAL. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica y Sanitaria de Alicante
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