Migraine-attributed burden, impact and disability, and migraine-impacted quality of life: Expert consensus on definitions from a Delphi process

Delphi; Migraine; Disability

Detalles Bibliográficos
Autores: Steiner, Timothy J, Katsarava, Zaza, Pozo Rosich, Patricia, Gantenbein, Andreas, Roche, Sarah L, Terwindt, Gisela
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2022
País:España
Institución:Departament de Salut de la Generalitat de Catalunya (DS)
Repositorio:Scientia. Dipòsit d'Informació Digital del Departament de Salut
OAI Identifier:oai:scientiasalut.gencat.cat:11351/8395
Acceso en línea:https://hdl.handle.net/11351/8395
Access Level:acceso abierto
Palabra clave:Migranya - Complicacions
Qualitat de vida - Avaluació
Presa de decisions
DISEASES::Nervous System Diseases::Central Nervous System Diseases::Brain Diseases::Headache Disorders::Headache Disorders, Primary::Migraine Disorders
Other subheadings::Other subheadings::Other subheadings::/complications
HEALTH CARE::Environment and Public Health::Public Health::Epidemiologic Measurements::Demography::Health Status::Quality of Life
PSYCHIATRY AND PSYCHOLOGY::Psychological Phenomena::Mental Processes::Thinking::Decision Making::Consensus
ENFERMEDADES::enfermedades del sistema nervioso::enfermedades del sistema nervioso central::enfermedades cerebrales::trastornos con cefaleas::cefaleas primarias::trastornos migrañosos
Otros calificadores::Otros calificadores::Otros calificadores::/complicaciones
ATENCIÓN DE SALUD::ambiente y salud pública::salud pública::medidas epidemiológicas::demografía::estado de salud::calidad de vida
PSIQUIATRÍA Y PSICOLOGÍA::fenómenos psicológicos::procesos mentales::pensamiento::toma de decisión::consenso
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dc.title.none.fl_str_mv Migraine-attributed burden, impact and disability, and migraine-impacted quality of life: Expert consensus on definitions from a Delphi process
title Migraine-attributed burden, impact and disability, and migraine-impacted quality of life: Expert consensus on definitions from a Delphi process
spellingShingle Migraine-attributed burden, impact and disability, and migraine-impacted quality of life: Expert consensus on definitions from a Delphi process
Steiner, Timothy J
Migranya - Complicacions
Qualitat de vida - Avaluació
Presa de decisions
DISEASES::Nervous System Diseases::Central Nervous System Diseases::Brain Diseases::Headache Disorders::Headache Disorders, Primary::Migraine Disorders
Other subheadings::Other subheadings::Other subheadings::/complications
HEALTH CARE::Environment and Public Health::Public Health::Epidemiologic Measurements::Demography::Health Status::Quality of Life
PSYCHIATRY AND PSYCHOLOGY::Psychological Phenomena::Mental Processes::Thinking::Decision Making::Consensus
ENFERMEDADES::enfermedades del sistema nervioso::enfermedades del sistema nervioso central::enfermedades cerebrales::trastornos con cefaleas::cefaleas primarias::trastornos migrañosos
Otros calificadores::Otros calificadores::Otros calificadores::/complicaciones
ATENCIÓN DE SALUD::ambiente y salud pública::salud pública::medidas epidemiológicas::demografía::estado de salud::calidad de vida
PSIQUIATRÍA Y PSICOLOGÍA::fenómenos psicológicos::procesos mentales::pensamiento::toma de decisión::consenso
title_short Migraine-attributed burden, impact and disability, and migraine-impacted quality of life: Expert consensus on definitions from a Delphi process
title_full Migraine-attributed burden, impact and disability, and migraine-impacted quality of life: Expert consensus on definitions from a Delphi process
title_fullStr Migraine-attributed burden, impact and disability, and migraine-impacted quality of life: Expert consensus on definitions from a Delphi process
title_full_unstemmed Migraine-attributed burden, impact and disability, and migraine-impacted quality of life: Expert consensus on definitions from a Delphi process
title_sort Migraine-attributed burden, impact and disability, and migraine-impacted quality of life: Expert consensus on definitions from a Delphi process
dc.creator.none.fl_str_mv Steiner, Timothy J
Katsarava, Zaza
Pozo Rosich, Patricia
Gantenbein, Andreas
Roche, Sarah L
Terwindt, Gisela
author Steiner, Timothy J
author_facet Steiner, Timothy J
Katsarava, Zaza
Pozo Rosich, Patricia
Gantenbein, Andreas
Roche, Sarah L
Terwindt, Gisela
author_role author
author2 Katsarava, Zaza
Pozo Rosich, Patricia
Gantenbein, Andreas
Roche, Sarah L
Terwindt, Gisela
author2_role author
author
author
author
author
dc.contributor.none.fl_str_mv Institut Català de la Salut
[Steiner TJ] Department of Neuromedicine and Movement Science, NTNU Norwegian University of Science and Technology, Trondheim, Norway. Division of Brain Sciences, Imperial College London, London, UK. [Terwindt GM] Department of Neurology, Leiden University Medical Center, Leiden, The Netherlands. [Katsarava Z] Christian Hospital Unna, Unna, Germany. Department of Neurology, University of Duisburg-Essen, Essen, Germany. EVEX Medical Corporation, Tbilisi, Georgia. [Pozo-Rosich P] Unitat de Cefalea, Servei de Neurologia, Vall d’Hebron Hospital Universitari, Barcelona, Spain. Grup de Recerca en Cefalea, Vall d’Hebron Institut de Recerca (VHIR), Barcelona, Spain. Universitat Autònoma de Barcelona, Bellaterra, Spain. [Gantenbein AR] Department of Neurology, ZURZACH Care, Bad Zurzach, Switzerland. Neurological Practice, Neurologie am Untertor, Bülach, Switzerland. Department of Neurology, University Hospital Zurich, Zürich, Switzerland. [Roche SL] Eli Lilly and Company, Cork, Ireland
Vall d'Hebron Barcelona Hospital Campus
dc.subject.none.fl_str_mv Migranya - Complicacions
Qualitat de vida - Avaluació
Presa de decisions
DISEASES::Nervous System Diseases::Central Nervous System Diseases::Brain Diseases::Headache Disorders::Headache Disorders, Primary::Migraine Disorders
Other subheadings::Other subheadings::Other subheadings::/complications
HEALTH CARE::Environment and Public Health::Public Health::Epidemiologic Measurements::Demography::Health Status::Quality of Life
PSYCHIATRY AND PSYCHOLOGY::Psychological Phenomena::Mental Processes::Thinking::Decision Making::Consensus
ENFERMEDADES::enfermedades del sistema nervioso::enfermedades del sistema nervioso central::enfermedades cerebrales::trastornos con cefaleas::cefaleas primarias::trastornos migrañosos
Otros calificadores::Otros calificadores::Otros calificadores::/complicaciones
ATENCIÓN DE SALUD::ambiente y salud pública::salud pública::medidas epidemiológicas::demografía::estado de salud::calidad de vida
PSIQUIATRÍA Y PSICOLOGÍA::fenómenos psicológicos::procesos mentales::pensamiento::toma de decisión::consenso
topic Migranya - Complicacions
Qualitat de vida - Avaluació
Presa de decisions
DISEASES::Nervous System Diseases::Central Nervous System Diseases::Brain Diseases::Headache Disorders::Headache Disorders, Primary::Migraine Disorders
Other subheadings::Other subheadings::Other subheadings::/complications
HEALTH CARE::Environment and Public Health::Public Health::Epidemiologic Measurements::Demography::Health Status::Quality of Life
PSYCHIATRY AND PSYCHOLOGY::Psychological Phenomena::Mental Processes::Thinking::Decision Making::Consensus
ENFERMEDADES::enfermedades del sistema nervioso::enfermedades del sistema nervioso central::enfermedades cerebrales::trastornos con cefaleas::cefaleas primarias::trastornos migrañosos
Otros calificadores::Otros calificadores::Otros calificadores::/complicaciones
ATENCIÓN DE SALUD::ambiente y salud pública::salud pública::medidas epidemiológicas::demografía::estado de salud::calidad de vida
PSIQUIATRÍA Y PSICOLOGÍA::fenómenos psicológicos::procesos mentales::pensamiento::toma de decisión::consenso
description Delphi; Migraine; Disability
publishDate 2022
dc.date.none.fl_str_mv 2022
2022
2022
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://hdl.handle.net/11351/8395
url https://hdl.handle.net/11351/8395
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.relation.none.fl_str_mv Cephalalgia;42(13)
https://doi.org/10.1177/03331024221110102
dc.rights.none.fl_str_mv Attribution-NonCommercial 4.0 International
http://creativecommons.org/licenses/by-nc/4.0/
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Attribution-NonCommercial 4.0 International
http://creativecommons.org/licenses/by-nc/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv SAGE Publications
publisher.none.fl_str_mv SAGE Publications
dc.source.none.fl_str_mv Scientia
reponame:Scientia. Dipòsit d'Informació Digital del Departament de Salut
instname:Departament de Salut de la Generalitat de Catalunya (DS)
instname_str Departament de Salut de la Generalitat de Catalunya (DS)
reponame_str Scientia. Dipòsit d'Informació Digital del Departament de Salut
collection Scientia. Dipòsit d'Informació Digital del Departament de Salut
repository.name.fl_str_mv
repository.mail.fl_str_mv
_version_ 1869407709626892288
spelling Migraine-attributed burden, impact and disability, and migraine-impacted quality of life: Expert consensus on definitions from a Delphi processSteiner, Timothy JKatsarava, ZazaPozo Rosich, PatriciaGantenbein, AndreasRoche, Sarah LTerwindt, GiselaMigranya - ComplicacionsQualitat de vida - AvaluacióPresa de decisionsDISEASES::Nervous System Diseases::Central Nervous System Diseases::Brain Diseases::Headache Disorders::Headache Disorders, Primary::Migraine DisordersOther subheadings::Other subheadings::Other subheadings::/complicationsHEALTH CARE::Environment and Public Health::Public Health::Epidemiologic Measurements::Demography::Health Status::Quality of LifePSYCHIATRY AND PSYCHOLOGY::Psychological Phenomena::Mental Processes::Thinking::Decision Making::ConsensusENFERMEDADES::enfermedades del sistema nervioso::enfermedades del sistema nervioso central::enfermedades cerebrales::trastornos con cefaleas::cefaleas primarias::trastornos migrañososOtros calificadores::Otros calificadores::Otros calificadores::/complicacionesATENCIÓN DE SALUD::ambiente y salud pública::salud pública::medidas epidemiológicas::demografía::estado de salud::calidad de vidaPSIQUIATRÍA Y PSICOLOGÍA::fenómenos psicológicos::procesos mentales::pensamiento::toma de decisión::consensoDelphi; Migraine; DisabilityDelphi; Migraña; DiscapacidadDelphi; Migranya; DiscapacitatBackground Migraine-attributed burden, impact, disability and migraine-impacted quality of life are important concepts in clinical management, clinical and epidemiological research, and health policy, requiring clear and agreed definitions. We aimed to formulate concise and precise definitions of these concepts by expert consensus. Methods We searched the terms migraine-attributed burden, impact, disability and migraine-impacted quality of life in Embase and Medline from 1974 and 1946 respectively. We followed a Delphi process to reach consensus on definitions. Results We found widespread conflation of concepts and inconsistent terminology within publications. Following three Delphi rounds, we defined migraine-attributed burden as “the summation of all negative consequences of the disease or its diagnosis”; migraine-attributed impact as “the effect of the disease, or its diagnosis, on a specified aspect of life, health or wellbeing”; migraine-attributed disability as “physical, cognitive and mental incapacities imposed by the disease”; and migraine-impacted quality of life as “the subjective assessment by a person with the disease of their general wellbeing, position and prospects in life”. We complemented each definition with a detailed description. Conclusion These definitions and descriptions should foster consistency and encourage more appropriate use of currently available quantifying instruments and aid the future development of others.The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was funded by Eli Lilly and Company.SAGE PublicationsInstitut Català de la Salut[Steiner TJ] Department of Neuromedicine and Movement Science, NTNU Norwegian University of Science and Technology, Trondheim, Norway. Division of Brain Sciences, Imperial College London, London, UK. [Terwindt GM] Department of Neurology, Leiden University Medical Center, Leiden, The Netherlands. [Katsarava Z] Christian Hospital Unna, Unna, Germany. Department of Neurology, University of Duisburg-Essen, Essen, Germany. EVEX Medical Corporation, Tbilisi, Georgia. [Pozo-Rosich P] Unitat de Cefalea, Servei de Neurologia, Vall d’Hebron Hospital Universitari, Barcelona, Spain. Grup de Recerca en Cefalea, Vall d’Hebron Institut de Recerca (VHIR), Barcelona, Spain. Universitat Autònoma de Barcelona, Bellaterra, Spain. [Gantenbein AR] Department of Neurology, ZURZACH Care, Bad Zurzach, Switzerland. Neurological Practice, Neurologie am Untertor, Bülach, Switzerland. Department of Neurology, University Hospital Zurich, Zürich, Switzerland. [Roche SL] Eli Lilly and Company, Cork, IrelandVall d'Hebron Barcelona Hospital Campus202220222022info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://hdl.handle.net/11351/8395Scientiareponame:Scientia. Dipòsit d'Informació Digital del Departament de Salutinstname:Departament de Salut de la Generalitat de Catalunya (DS)InglésCephalalgia;42(13)https://doi.org/10.1177/03331024221110102Attribution-NonCommercial 4.0 Internationalhttp://creativecommons.org/licenses/by-nc/4.0/info:eu-repo/semantics/openAccessoai:scientiasalut.gencat.cat:11351/83952026-06-12T09:38:37Z
score 15.812429

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