Establishing Occupational Therapy Needs: A Semi-Structured Interview with Hereditary Transthyretin Amyloidosis Patients

The purpose of this study was to explore the occupational performance and needs of patients with hereditary transthyretin amyloidosis (ATTRv). A semi-structured interview was conducted by an occupational therapist with 44 patients with Val50Met-ATTRv recruited through patient associations. The inter...

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Autores: Gayà-Barroso, Aina, González-Moreno, Juan, Rodriguez Rodriguez, Adrian, Ripoll Vera, Tomás, Losada-López, Inés, Gili, Margalida, Cisneros-Barroso, Eugenia
Formato: artículo
Fecha de publicación:2022
País:España
Recursos:Conselleria de Salut i Consum del Govern de les Illes Balears
Repositorio:Docusalut
Idioma:inglés
OAI Identifier:oai:dnet:docusalut___::a6fa4e70e447e05f289d3bd0af36bd24
Acesso em linha:https://hdl.handle.net/20.500.13003/27293
Access Level:acceso abierto
Palavra-chave:Activities of Daily Living
Amyloid Neuropathies, Familial
Occupational Therapy
Actividades Cotidianas
Neuropatías Amiloides Familiares
Terapia Ocupacional
intervention
occupational therapy
polyneuropathy
semi-structured interview
transthyretin amyloidosis
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spelling Establishing Occupational Therapy Needs: A Semi-Structured Interview with Hereditary Transthyretin Amyloidosis PatientsGayà-Barroso, AinaGonzález-Moreno, JuanRodriguez Rodriguez, AdrianRipoll Vera, TomásLosada-López, InésGili, MargalidaCisneros-Barroso, EugeniaCisneros-Barroso, EugeniaActivities of Daily LivingAmyloid Neuropathies, FamilialOccupational TherapyActividades CotidianasNeuropatías Amiloides FamiliaresTerapia Ocupacionalinterventionoccupational therapypolyneuropathysemi-structured interviewtransthyretin amyloidosisThe purpose of this study was to explore the occupational performance and needs of patients with hereditary transthyretin amyloidosis (ATTRv). A semi-structured interview was conducted by an occupational therapist with 44 patients with Val50Met-ATTRv recruited through patient associations. The interview addressed three related dimensions. The first one, the physical dimension, was evaluated using the Spanish versions of the Barthel Index, the Lawton and Brody scale, and the Norfolk questionnaire; the second one, the psychological dimension, was assessed with the Warwick–Edinburgh Mental Well-Being Scale and the SF-36 questionnaire; and the third dimension, the occupational performance, was assessed through unstructured questions on daily occupations, work, roles, and hobbies given the lack of standardized scales. Twenty participants (45.4%) responded that the disease had affected their basic activities of daily living, twenty- four (54.5%) perceived an impact on their instrumental activities of daily living, and all the participants reported that the disease symptoms had affected their ability to perform advanced activities as well as their employment status. Only three patients (6.8%) reported a lack of psychological impairment following disease diagnosis. These findings suggest that a semi-structured interview conducted by an occupational therapist can provide essential information that should be considered for the implementation of occupational therapy programs targeting patients living with a diagnosis of ATTRv.MDPI AG20222022-09-1720222022-09-17research articlehttp://purl.org/coar/resource_type/c_2df8fbb1info:eu-repo/semantics/articleapplication/pdfhttps://hdl.handle.net/20.500.13003/27293reponame:Docusalutinstname:Conselleria de Salut i Consum del Govern de les Illes BalearsInglésengopen accesshttp://purl.org/coar/access_right/c_abf2Attribution 4.0 Internationalhttp://creativecommons.org/licenses/by/4.0/info:eu-repo/semantics/openAccessoai:dnet:docusalut___::a6fa4e70e447e05f289d3bd0af36bd242026-06-22T12:44:07Z
dc.title.none.fl_str_mv Establishing Occupational Therapy Needs: A Semi-Structured Interview with Hereditary Transthyretin Amyloidosis Patients
title Establishing Occupational Therapy Needs: A Semi-Structured Interview with Hereditary Transthyretin Amyloidosis Patients
spellingShingle Establishing Occupational Therapy Needs: A Semi-Structured Interview with Hereditary Transthyretin Amyloidosis Patients
Gayà-Barroso, Aina
Activities of Daily Living
Amyloid Neuropathies, Familial
Occupational Therapy
Actividades Cotidianas
Neuropatías Amiloides Familiares
Terapia Ocupacional
intervention
occupational therapy
polyneuropathy
semi-structured interview
transthyretin amyloidosis
title_short Establishing Occupational Therapy Needs: A Semi-Structured Interview with Hereditary Transthyretin Amyloidosis Patients
title_full Establishing Occupational Therapy Needs: A Semi-Structured Interview with Hereditary Transthyretin Amyloidosis Patients
title_fullStr Establishing Occupational Therapy Needs: A Semi-Structured Interview with Hereditary Transthyretin Amyloidosis Patients
title_full_unstemmed Establishing Occupational Therapy Needs: A Semi-Structured Interview with Hereditary Transthyretin Amyloidosis Patients
title_sort Establishing Occupational Therapy Needs: A Semi-Structured Interview with Hereditary Transthyretin Amyloidosis Patients
dc.creator.none.fl_str_mv Gayà-Barroso, Aina
González-Moreno, Juan
Rodriguez Rodriguez, Adrian
Ripoll Vera, Tomás
Losada-López, Inés
Gili, Margalida
Cisneros-Barroso, Eugenia
Cisneros-Barroso, Eugenia
author Gayà-Barroso, Aina
author_facet Gayà-Barroso, Aina
González-Moreno, Juan
Rodriguez Rodriguez, Adrian
Ripoll Vera, Tomás
Losada-López, Inés
Gili, Margalida
Cisneros-Barroso, Eugenia
author_role author
author2 González-Moreno, Juan
Rodriguez Rodriguez, Adrian
Ripoll Vera, Tomás
Losada-López, Inés
Gili, Margalida
Cisneros-Barroso, Eugenia
author2_role author
author
author
author
author
author
dc.contributor.none.fl_str_mv
dc.subject.none.fl_str_mv Activities of Daily Living
Amyloid Neuropathies, Familial
Occupational Therapy
Actividades Cotidianas
Neuropatías Amiloides Familiares
Terapia Ocupacional
intervention
occupational therapy
polyneuropathy
semi-structured interview
transthyretin amyloidosis
topic Activities of Daily Living
Amyloid Neuropathies, Familial
Occupational Therapy
Actividades Cotidianas
Neuropatías Amiloides Familiares
Terapia Ocupacional
intervention
occupational therapy
polyneuropathy
semi-structured interview
transthyretin amyloidosis
description The purpose of this study was to explore the occupational performance and needs of patients with hereditary transthyretin amyloidosis (ATTRv). A semi-structured interview was conducted by an occupational therapist with 44 patients with Val50Met-ATTRv recruited through patient associations. The interview addressed three related dimensions. The first one, the physical dimension, was evaluated using the Spanish versions of the Barthel Index, the Lawton and Brody scale, and the Norfolk questionnaire; the second one, the psychological dimension, was assessed with the Warwick–Edinburgh Mental Well-Being Scale and the SF-36 questionnaire; and the third dimension, the occupational performance, was assessed through unstructured questions on daily occupations, work, roles, and hobbies given the lack of standardized scales. Twenty participants (45.4%) responded that the disease had affected their basic activities of daily living, twenty- four (54.5%) perceived an impact on their instrumental activities of daily living, and all the participants reported that the disease symptoms had affected their ability to perform advanced activities as well as their employment status. Only three patients (6.8%) reported a lack of psychological impairment following disease diagnosis. These findings suggest that a semi-structured interview conducted by an occupational therapist can provide essential information that should be considered for the implementation of occupational therapy programs targeting patients living with a diagnosis of ATTRv.
publishDate 2022
dc.date.none.fl_str_mv 2022
2022-09-17
2022
2022-09-17
dc.type.none.fl_str_mv research article
http://purl.org/coar/resource_type/c_2df8fbb1
dc.type.openaire.fl_str_mv info:eu-repo/semantics/article
format article
dc.identifier.none.fl_str_mv https://hdl.handle.net/20.500.13003/27293
url https://hdl.handle.net/20.500.13003/27293
dc.language.none.fl_str_mv Inglés
eng
language_invalid_str_mv Inglés
language eng
dc.rights.none.fl_str_mv open access
http://purl.org/coar/access_right/c_abf2
Attribution 4.0 International
http://creativecommons.org/licenses/by/4.0/
dc.rights.openaire.fl_str_mv info:eu-repo/semantics/openAccess
rights_invalid_str_mv open access
http://purl.org/coar/access_right/c_abf2
Attribution 4.0 International
http://creativecommons.org/licenses/by/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv MDPI AG
publisher.none.fl_str_mv MDPI AG
dc.source.none.fl_str_mv reponame:Docusalut
instname:Conselleria de Salut i Consum del Govern de les Illes Balears
instname_str Conselleria de Salut i Consum del Govern de les Illes Balears
reponame_str Docusalut
collection Docusalut
repository.name.fl_str_mv
repository.mail.fl_str_mv
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score 15,812429

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