Developing a medication adherence technologies repository: proposed structure and protocol for an online real-time Delphi study.

An online interactive repository of available medication adherence technologies may facilitate their selection and adoption by different stakeholders. Developing a repository is among the main objectives of the European Network to Advance Best practices and technoLogy on medication adherencE (ENABLE...

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Autores: Nabergoj Makovec, Urska, Goetzinger, Catherine, Ribaut, Janette, Barnestein-Fonseca, Pilar, Haupenthal, Frederik, Herdeiro, Maria Teresa, Grant, Sean Patrick, Jácome, Cristina, Roque, Fatima, Smits, Dins, Tadic, Ivana, Dima, Alexandra L, European Network to Advance Best practices and technoLogy on medication adherencE (ENABLE), European Network to Advance Best Practices and TechnoLogy on Medication AdherencE (ENABLE)
Formato: artículo
Fecha de publicación:2022
País:España
Recursos:Instituto de Salud Carlos III (ISCIII)
Repositorio:Repisalud
Idioma:inglés
OAI Identifier:oai:repisalud.isciii.es:20.500.12105/18622
Acesso em linha:http://hdl.handle.net/20.500.12105/18622
Access Level:acceso abierto
Palavra-chave:health informatics
public health
social medicine
Counseling
Delphi Technique
Europe
Humans
Medication Adherence
Technology
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spelling Developing a medication adherence technologies repository: proposed structure and protocol for an online real-time Delphi study.Nabergoj Makovec, UrskaGoetzinger, CatherineRibaut, JanetteBarnestein-Fonseca, PilarHaupenthal, FrederikHerdeiro, Maria TeresaGrant, Sean PatrickJácome, CristinaRoque, FatimaSmits, DinsTadic, IvanaDima, Alexandra LEuropean Network to Advance Best practices and technoLogy on medication adherencE (ENABLE)European Network to Advance Best Practices and TechnoLogy on Medication AdherencE (ENABLE)health informaticspublic healthsocial medicineCounselingDelphi TechniqueEuropeHumansMedication AdherenceTechnologyAn online interactive repository of available medication adherence technologies may facilitate their selection and adoption by different stakeholders. Developing a repository is among the main objectives of the European Network to Advance Best practices and technoLogy on medication adherencE (ENABLE) COST Action (CA19132). However, meeting the needs of diverse stakeholders requires careful consideration of the repository structure. A real-time online Delphi study by stakeholders from 39 countries with research, practice, policy, patient representation and technology development backgrounds will be conducted. Eleven ENABLE members from 9 European countries formed an interdisciplinary steering committee to develop the repository structure, prepare study protocol and perform it. Definitions of medication adherence technologies and their attributes were developed iteratively through literature review, discussions within the steering committee and ENABLE Action members, following ontology development recommendations. Three domains (product and provider information (D1), medication adherence descriptors (D2) and evaluation and implementation (D3)) branching in 13 attribute groups are proposed: product and provider information, target use scenarios, target health conditions, medication regimen, medication adherence management components, monitoring/measurement methods and targets, intervention modes of delivery, target behaviour determinants, behaviour change techniques, intervention providers, intervention settings, quality indicators and implementation indicators. Stakeholders will evaluate the proposed definition and attributes' relevance, clarity and completeness and have multiple opportunities to reconsider their evaluations based on aggregated feedback in real-time. Data collection will stop when the predetermined response rate will be achieved. We will quantify agreement and perform analyses of process indicators on the whole sample and per stakeholder group. Ethical approval for the COST ENABLE activities was granted by the Malaga Regional Research Ethics Committee. The Delphi protocol was considered compliant regarding data protection and security by the Data Protection Officer from University of Basel. Findings from the Delphi study will form the basis for the ENABLE repository structure and related activities.20242024-02-2720222022-04-2220222022-04-22research articlehttp://purl.org/coar/resource_type/c_2df8fbb1VoRhttp://purl.org/coar/version/c_970fb48d4fbd8a85info:eu-repo/semantics/articlehttp://hdl.handle.net/20.500.12105/18622reponame:Repisaludinstname:Instituto de Salud Carlos III (ISCIII)Inglésengopen accesshttp://purl.org/coar/access_right/c_abf2Attribution-NonCommercial 4.0 Internationalhttp://creativecommons.org/licenses/by-nc/4.0/info:eu-repo/semantics/openAccessoai:repisalud.isciii.es:20.500.12105/186222026-06-12T12:43:37Z
dc.title.none.fl_str_mv Developing a medication adherence technologies repository: proposed structure and protocol for an online real-time Delphi study.
title Developing a medication adherence technologies repository: proposed structure and protocol for an online real-time Delphi study.
spellingShingle Developing a medication adherence technologies repository: proposed structure and protocol for an online real-time Delphi study.
Nabergoj Makovec, Urska
health informatics
public health
social medicine
Counseling
Delphi Technique
Europe
Humans
Medication Adherence
Technology
title_short Developing a medication adherence technologies repository: proposed structure and protocol for an online real-time Delphi study.
title_full Developing a medication adherence technologies repository: proposed structure and protocol for an online real-time Delphi study.
title_fullStr Developing a medication adherence technologies repository: proposed structure and protocol for an online real-time Delphi study.
title_full_unstemmed Developing a medication adherence technologies repository: proposed structure and protocol for an online real-time Delphi study.
title_sort Developing a medication adherence technologies repository: proposed structure and protocol for an online real-time Delphi study.
dc.creator.none.fl_str_mv Nabergoj Makovec, Urska
Goetzinger, Catherine
Ribaut, Janette
Barnestein-Fonseca, Pilar
Haupenthal, Frederik
Herdeiro, Maria Teresa
Grant, Sean Patrick
Jácome, Cristina
Roque, Fatima
Smits, Dins
Tadic, Ivana
Dima, Alexandra L
European Network to Advance Best practices and technoLogy on medication adherencE (ENABLE)
European Network to Advance Best Practices and TechnoLogy on Medication AdherencE (ENABLE)
author Nabergoj Makovec, Urska
author_facet Nabergoj Makovec, Urska
Goetzinger, Catherine
Ribaut, Janette
Barnestein-Fonseca, Pilar
Haupenthal, Frederik
Herdeiro, Maria Teresa
Grant, Sean Patrick
Jácome, Cristina
Roque, Fatima
Smits, Dins
Tadic, Ivana
Dima, Alexandra L
European Network to Advance Best practices and technoLogy on medication adherencE (ENABLE)
European Network to Advance Best Practices and TechnoLogy on Medication AdherencE (ENABLE)
author_role author
author2 Goetzinger, Catherine
Ribaut, Janette
Barnestein-Fonseca, Pilar
Haupenthal, Frederik
Herdeiro, Maria Teresa
Grant, Sean Patrick
Jácome, Cristina
Roque, Fatima
Smits, Dins
Tadic, Ivana
Dima, Alexandra L
European Network to Advance Best practices and technoLogy on medication adherencE (ENABLE)
European Network to Advance Best Practices and TechnoLogy on Medication AdherencE (ENABLE)
author2_role author
author
author
author
author
author
author
author
author
author
author
author
author
dc.contributor.none.fl_str_mv
dc.subject.none.fl_str_mv health informatics
public health
social medicine
Counseling
Delphi Technique
Europe
Humans
Medication Adherence
Technology
topic health informatics
public health
social medicine
Counseling
Delphi Technique
Europe
Humans
Medication Adherence
Technology
description An online interactive repository of available medication adherence technologies may facilitate their selection and adoption by different stakeholders. Developing a repository is among the main objectives of the European Network to Advance Best practices and technoLogy on medication adherencE (ENABLE) COST Action (CA19132). However, meeting the needs of diverse stakeholders requires careful consideration of the repository structure. A real-time online Delphi study by stakeholders from 39 countries with research, practice, policy, patient representation and technology development backgrounds will be conducted. Eleven ENABLE members from 9 European countries formed an interdisciplinary steering committee to develop the repository structure, prepare study protocol and perform it. Definitions of medication adherence technologies and their attributes were developed iteratively through literature review, discussions within the steering committee and ENABLE Action members, following ontology development recommendations. Three domains (product and provider information (D1), medication adherence descriptors (D2) and evaluation and implementation (D3)) branching in 13 attribute groups are proposed: product and provider information, target use scenarios, target health conditions, medication regimen, medication adherence management components, monitoring/measurement methods and targets, intervention modes of delivery, target behaviour determinants, behaviour change techniques, intervention providers, intervention settings, quality indicators and implementation indicators. Stakeholders will evaluate the proposed definition and attributes' relevance, clarity and completeness and have multiple opportunities to reconsider their evaluations based on aggregated feedback in real-time. Data collection will stop when the predetermined response rate will be achieved. We will quantify agreement and perform analyses of process indicators on the whole sample and per stakeholder group. Ethical approval for the COST ENABLE activities was granted by the Malaga Regional Research Ethics Committee. The Delphi protocol was considered compliant regarding data protection and security by the Data Protection Officer from University of Basel. Findings from the Delphi study will form the basis for the ENABLE repository structure and related activities.
publishDate 2022
dc.date.none.fl_str_mv 2022
2022-04-22
2022
2022-04-22
2024
2024-02-27
dc.type.none.fl_str_mv research article
http://purl.org/coar/resource_type/c_2df8fbb1
VoR
http://purl.org/coar/version/c_970fb48d4fbd8a85
dc.type.openaire.fl_str_mv info:eu-repo/semantics/article
format article
dc.identifier.none.fl_str_mv http://hdl.handle.net/20.500.12105/18622
url http://hdl.handle.net/20.500.12105/18622
dc.language.none.fl_str_mv Inglés
eng
language_invalid_str_mv Inglés
language eng
dc.rights.none.fl_str_mv open access
http://purl.org/coar/access_right/c_abf2
Attribution-NonCommercial 4.0 International
http://creativecommons.org/licenses/by-nc/4.0/
dc.rights.openaire.fl_str_mv info:eu-repo/semantics/openAccess
rights_invalid_str_mv open access
http://purl.org/coar/access_right/c_abf2
Attribution-NonCommercial 4.0 International
http://creativecommons.org/licenses/by-nc/4.0/
eu_rights_str_mv openAccess
dc.source.none.fl_str_mv reponame:Repisalud
instname:Instituto de Salud Carlos III (ISCIII)
instname_str Instituto de Salud Carlos III (ISCIII)
reponame_str Repisalud
collection Repisalud
repository.name.fl_str_mv
repository.mail.fl_str_mv
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score 15,811543

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