Beyond visual acuity: Patient-relevant assessment measures of visual function in retinal diseases

Purpose: To identify patient-reported outcomes (PROs) and other clinical outcome measures (contrast sensitivity (CS), low-luminance visual acuity (LLVA) and reading acuity or reading speed (RA-RS)), relevant to patients with age-related macular degeneration (AMD) or diabetic retinopathy (DR), which...

ver descrição completa

Detalhes bibliográficos
Autores: Puell Marín, María Cinta, Contreras Martín, Inés, Pinilla Lozano, Isabel, Escobar Barranco, José Juan, Soler García, Antonio Manuel, Blasco, Antonio Javier, Lázaro, Pablo
Formato: artículo
Fecha de publicación:2021
País:España
Recursos:Universidad Complutense de Madrid (UCM)
Repositorio:Docta Complutense
Idioma:inglés
OAI Identifier:oai:docta.ucm.es:20.500.14352/7757
Acesso em linha:https://hdl.handle.net/20.500.14352/7757
Access Level:acceso abierto
Palavra-chave:617.73:617.75
617.735:616.379-008.64
617.73-003.8
Age-related macular degeneration
Retina
Diabetic retinopathy
Psychophysical testing
Retinal pathology research
Practice management
Socioeconomics and education in medicine
Ophthalmology
Oftalmología
Optometría
3201.09 Oftalmología
2209.15 Optometría
id ES_3ebf90b35ddfe0f013a8ec8aff10fa98
oai_identifier_str oai:docta.ucm.es:20.500.14352/7757
network_acronym_str ES
network_name_str España
repository_id_str
spelling Beyond visual acuity: Patient-relevant assessment measures of visual function in retinal diseasesPuell Marín, María CintaContreras Martín, InésPinilla Lozano, IsabelEscobar Barranco, José JuanSoler García, Antonio ManuelBlasco, Antonio JavierLázaro, Pablo617.73:617.75617.735:616.379-008.64617.73-003.8Age-related macular degenerationRetinaDiabetic retinopathyPsychophysical testingRetinal pathology researchPractice managementSocioeconomics and education in medicineOphthalmologyOftalmologíaOptometría3201.09 Oftalmología2209.15 OptometríaPurpose: To identify patient-reported outcomes (PROs) and other clinical outcome measures (contrast sensitivity (CS), low-luminance visual acuity (LLVA) and reading acuity or reading speed (RA-RS)), relevant to patients with age-related macular degeneration (AMD) or diabetic retinopathy (DR), which would be recommended for use in clinical practice. Methods: The RAND/UCLA Appropriateness Method, based on the synthesis of the scientific evidence and the collective judgment of an expert panel using the two-round Delphi method, was applied. The evidence synthesis was performed by searching for articles on outcome measures for AMD and/or DR published between 2005 and 2018 in English or Spanish. The expert panel consisted of 14 Spanish ophthalmologists, who rated the recommendation degree for each outcome measure on a scale of 1 (extremely irrelevant) to 9 (maximum relevance). The recommended outcome measures were established according to the panel median score and the level of the panelists’ agreement. Results: Through the evidence search, 33 PRO-specific questionnaires (21 for visual function, six for AMD, three for DR, one for AMD and DR) and two treatment satisfaction questionnaires (one on AMD and one on DR) were identified. In addition, 21 methods were found for measuring CS, five for LLVA, and nine for RA-RS. According to the panel ratings, 11 of the 64 outcome measures evaluated for AMD, and seven of the 61 evaluated for DR were recommended. Conclusion: The AMD and DR outcome measures recommended will help ophthalmologists choose the outcome measure most appropriate for their patients. Furthermore, the use of PROs will contribute to shifting clinical practice towards patient-centered medicine.SAGE PublicationsUniversidad Complutense de Madrid20212021-01-2220212021-01-22journal articlehttp://purl.org/coar/resource_type/c_6501info:eu-repo/semantics/articleapplication/pdfhttps://hdl.handle.net/20.500.14352/7757reponame:Docta Complutenseinstname:Universidad Complutense de Madrid (UCM)Inglésengopen accesshttp://purl.org/coar/access_right/c_abf2info:eu-repo/semantics/openAccessoai:docta.ucm.es:20.500.14352/77572026-06-02T12:44:21Z
dc.title.none.fl_str_mv Beyond visual acuity: Patient-relevant assessment measures of visual function in retinal diseases
title Beyond visual acuity: Patient-relevant assessment measures of visual function in retinal diseases
spellingShingle Beyond visual acuity: Patient-relevant assessment measures of visual function in retinal diseases
Puell Marín, María Cinta
617.73:617.75
617.735:616.379-008.64
617.73-003.8
Age-related macular degeneration
Retina
Diabetic retinopathy
Psychophysical testing
Retinal pathology research
Practice management
Socioeconomics and education in medicine
Ophthalmology
Oftalmología
Optometría
3201.09 Oftalmología
2209.15 Optometría
title_short Beyond visual acuity: Patient-relevant assessment measures of visual function in retinal diseases
title_full Beyond visual acuity: Patient-relevant assessment measures of visual function in retinal diseases
title_fullStr Beyond visual acuity: Patient-relevant assessment measures of visual function in retinal diseases
title_full_unstemmed Beyond visual acuity: Patient-relevant assessment measures of visual function in retinal diseases
title_sort Beyond visual acuity: Patient-relevant assessment measures of visual function in retinal diseases
dc.creator.none.fl_str_mv Puell Marín, María Cinta
Contreras Martín, Inés
Pinilla Lozano, Isabel
Escobar Barranco, José Juan
Soler García, Antonio Manuel
Blasco, Antonio Javier
Lázaro, Pablo
author Puell Marín, María Cinta
author_facet Puell Marín, María Cinta
Contreras Martín, Inés
Pinilla Lozano, Isabel
Escobar Barranco, José Juan
Soler García, Antonio Manuel
Blasco, Antonio Javier
Lázaro, Pablo
author_role author
author2 Contreras Martín, Inés
Pinilla Lozano, Isabel
Escobar Barranco, José Juan
Soler García, Antonio Manuel
Blasco, Antonio Javier
Lázaro, Pablo
author2_role author
author
author
author
author
author
dc.contributor.none.fl_str_mv Universidad Complutense de Madrid
dc.subject.none.fl_str_mv 617.73:617.75
617.735:616.379-008.64
617.73-003.8
Age-related macular degeneration
Retina
Diabetic retinopathy
Psychophysical testing
Retinal pathology research
Practice management
Socioeconomics and education in medicine
Ophthalmology
Oftalmología
Optometría
3201.09 Oftalmología
2209.15 Optometría
topic 617.73:617.75
617.735:616.379-008.64
617.73-003.8
Age-related macular degeneration
Retina
Diabetic retinopathy
Psychophysical testing
Retinal pathology research
Practice management
Socioeconomics and education in medicine
Ophthalmology
Oftalmología
Optometría
3201.09 Oftalmología
2209.15 Optometría
description Purpose: To identify patient-reported outcomes (PROs) and other clinical outcome measures (contrast sensitivity (CS), low-luminance visual acuity (LLVA) and reading acuity or reading speed (RA-RS)), relevant to patients with age-related macular degeneration (AMD) or diabetic retinopathy (DR), which would be recommended for use in clinical practice. Methods: The RAND/UCLA Appropriateness Method, based on the synthesis of the scientific evidence and the collective judgment of an expert panel using the two-round Delphi method, was applied. The evidence synthesis was performed by searching for articles on outcome measures for AMD and/or DR published between 2005 and 2018 in English or Spanish. The expert panel consisted of 14 Spanish ophthalmologists, who rated the recommendation degree for each outcome measure on a scale of 1 (extremely irrelevant) to 9 (maximum relevance). The recommended outcome measures were established according to the panel median score and the level of the panelists’ agreement. Results: Through the evidence search, 33 PRO-specific questionnaires (21 for visual function, six for AMD, three for DR, one for AMD and DR) and two treatment satisfaction questionnaires (one on AMD and one on DR) were identified. In addition, 21 methods were found for measuring CS, five for LLVA, and nine for RA-RS. According to the panel ratings, 11 of the 64 outcome measures evaluated for AMD, and seven of the 61 evaluated for DR were recommended. Conclusion: The AMD and DR outcome measures recommended will help ophthalmologists choose the outcome measure most appropriate for their patients. Furthermore, the use of PROs will contribute to shifting clinical practice towards patient-centered medicine.
publishDate 2021
dc.date.none.fl_str_mv 2021
2021-01-22
2021
2021-01-22
dc.type.none.fl_str_mv journal article
http://purl.org/coar/resource_type/c_6501
dc.type.openaire.fl_str_mv info:eu-repo/semantics/article
format article
dc.identifier.none.fl_str_mv https://hdl.handle.net/20.500.14352/7757
url https://hdl.handle.net/20.500.14352/7757
dc.language.none.fl_str_mv Inglés
eng
language_invalid_str_mv Inglés
language eng
dc.rights.none.fl_str_mv open access
http://purl.org/coar/access_right/c_abf2
dc.rights.openaire.fl_str_mv info:eu-repo/semantics/openAccess
rights_invalid_str_mv open access
http://purl.org/coar/access_right/c_abf2
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv SAGE Publications
publisher.none.fl_str_mv SAGE Publications
dc.source.none.fl_str_mv reponame:Docta Complutense
instname:Universidad Complutense de Madrid (UCM)
instname_str Universidad Complutense de Madrid (UCM)
reponame_str Docta Complutense
collection Docta Complutense
repository.name.fl_str_mv
repository.mail.fl_str_mv
_version_ 1869406573679345664
score 15,300719

Registos relacionados