Spanish registry of hemoglobinopathies and rare anemias (REHem-AR): demographics, complications, and management of patients with β-thalassemia

The increase in the number of patients with hemoglobinopathies in Europe in recent decades highlights the need for more detailed epidemiological information in Spain. To fulfil this need, the Spanish Society of Pediatric Hematology and Oncology (SEHOP) sponsored the creation of a national registry o...

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Detalles Bibliográficos
Autores: Bardón Cancho, Eduardo J., Marco-Sánchez, José Manuel, Benéitez-Pastor, David, Payán-Pernía, Salvador, Ruiz Llobet, Anna, Berrueco, Rubén, García-Morin, Marina, Beléndez, Cristina, Senent, Leonor, Ortega Acosta, María José, Peláez Pleguezuelos, Irene, Velasco Pazos, Pablo, Collado, Anna, Moreno-Carbonell, Marta, Argilés, Bienvenida, Pérez de Soto, Inmaculada, Mar Bermúdez, María del, Salido Fiérrez, Eduardo J., Blanco-Álvarez, Adoración, González Navarro, Pablo, Cela, Elena
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2024
País:España
Institución:Consejo Superior de Investigaciones Científicas (CSIC)
Repositorio:DIGITAL.CSIC. Repositorio Institucional del CSIC
OAI Identifier:oai:digital.csic.es:10261/370625
Acceso en línea:http://hdl.handle.net/10261/370625
https://api.elsevier.com/content/abstract/scopus_id/85188277527
Access Level:acceso abierto
Palabra clave:Thalassemia
Anemia
Complications
Hemoglobinopathies
Registry
Spain
Descripción
Sumario:The increase in the number of patients with hemoglobinopathies in Europe in recent decades highlights the need for more detailed epidemiological information in Spain. To fulfil this need, the Spanish Society of Pediatric Hematology and Oncology (SEHOP) sponsored the creation of a national registry of hemoglobinopathies known as REHem-AR (Spanish Registry of Hemoglobinopathies and Rare Anemias). Data from the transfusion-dependent (TDT) and non-transfusion-dependent (NTDT) β-thalassemia cohorts are described and analyzed.

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