Towards a comprehensive psychosocial profile of the family caregiver of people with dementia: Guidelines for intervention

[EN]Background The profile of caregivers focuses on socio-demographic variables (age, gender, kinship, and educational level). However, buffer variables (e.g., dysfunctional thoughts) and indicators of the impacts of caregiving (e.g., stress) are often overlooked. Objective The study aims to offer a...

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Autores: Jiménez García Tizón, Sara, Navarro-Prados, Ana Belén, Bueno Martínez, María Belén
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2025
País:España
Institución:Universidad de Salamanca (USAL)
Repositorio:GREDOS. Repositorio Institucional de la Universidad de Salamanca
OAI Identifier:oai:gredos.usal.es:10366/164380
Acceso en línea:http://hdl.handle.net/10366/164380
Access Level:acceso abierto
Palabra clave:Care
Dementia
Family caregiver
Profile
Psychoeducational intervention
Cuidado
Demencia
Cuidador familiar
Perfil
Intervención psicoeducativa
61 Psicología
6103.01, 3212 Salud Pública
id ES_1fcdc20d8c98602cc2f751c7e2f6b6f5
oai_identifier_str oai:gredos.usal.es:10366/164380
network_acronym_str ES
network_name_str España
repository_id_str
dc.title.none.fl_str_mv Towards a comprehensive psychosocial profile of the family caregiver of people with dementia: Guidelines for intervention
title Towards a comprehensive psychosocial profile of the family caregiver of people with dementia: Guidelines for intervention
spellingShingle Towards a comprehensive psychosocial profile of the family caregiver of people with dementia: Guidelines for intervention
Jiménez García Tizón, Sara
Care
Dementia
Family caregiver
Profile
Psychoeducational intervention
Cuidado
Demencia
Cuidador familiar
Perfil
Intervención psicoeducativa
61 Psicología
6103.01, 3212 Salud Pública
title_short Towards a comprehensive psychosocial profile of the family caregiver of people with dementia: Guidelines for intervention
title_full Towards a comprehensive psychosocial profile of the family caregiver of people with dementia: Guidelines for intervention
title_fullStr Towards a comprehensive psychosocial profile of the family caregiver of people with dementia: Guidelines for intervention
title_full_unstemmed Towards a comprehensive psychosocial profile of the family caregiver of people with dementia: Guidelines for intervention
title_sort Towards a comprehensive psychosocial profile of the family caregiver of people with dementia: Guidelines for intervention
dc.creator.none.fl_str_mv Jiménez García Tizón, Sara
Navarro-Prados, Ana Belén
Bueno Martínez, María Belén
author Jiménez García Tizón, Sara
author_facet Jiménez García Tizón, Sara
Navarro-Prados, Ana Belén
Bueno Martínez, María Belén
author_role author
author2 Navarro-Prados, Ana Belén
Bueno Martínez, María Belén
author2_role author
author
dc.subject.none.fl_str_mv Care
Dementia
Family caregiver
Profile
Psychoeducational intervention
Cuidado
Demencia
Cuidador familiar
Perfil
Intervención psicoeducativa
61 Psicología
6103.01, 3212 Salud Pública
topic Care
Dementia
Family caregiver
Profile
Psychoeducational intervention
Cuidado
Demencia
Cuidador familiar
Perfil
Intervención psicoeducativa
61 Psicología
6103.01, 3212 Salud Pública
description [EN]Background The profile of caregivers focuses on socio-demographic variables (age, gender, kinship, and educational level). However, buffer variables (e.g., dysfunctional thoughts) and indicators of the impacts of caregiving (e.g., stress) are often overlooked. Objective The study aims to offer a comprehensive view of the profile of the family caregiver of people with dementia by considering aspects contemplated in theoretical explanatory models of care. Methods It was based on a cross-sectional design. Socio-demographic and care-related characteristics and variables of the consequences of caregiving and related buffers were evaluated for 40 family caregivers of people with dementia. The Short form of Social Problem-Solving Inventory-Revised (SPSI-R-25), the Leisure Time Satisfaction Survey (LTS), the Revised Scale for Caregiving Self-Efficacy (RSCSE), the Escala de Habilidades Sociales (EHS), the Psychosocial Support Questionnaire (PSQ), the Cuestionario de Pensamientos Disfuncionales (CPD), the Caregiver Burden Interview (CBI), the Center for Epidemiologic Studies-Depression Scale (CES-D), the Perceived Stress Scale (PSS) and the World Health Organization Quality of Life Assessment–AGE (WHOQOL-AGE) were utilized. Descriptions of the variables and contrast tests (chi-square tests, t-tests, and two-factor ANOVAs) were made and used to compare the differences according to gender and kinship. Results Family caregivers are women, typically around 60 years old, wives or daughters, married, with primary/secondary education, who spend long hours caring with little support. They presented a low level of social and problemsolving skills, received little social support, had low self-efficacy and quality of life, highly dysfunctional thoughts, overload, depressive symptomatology, and stress. Significant differences were found according to kinship in educational level, employment status, hours per day dedicated to care time, and contemplating placing the person in a nursing home. Significant differences by kinship were also found in self-efficacy for responding to disruptive behaviors, perceived social support, and stress. Spouses have lower levels of this type of self-efficacy and have higher levels of stress but perceive greater social support. Males have higher levels of dysfunctional thoughts. Conclusion This study facilitates the identification of the specific needs of caregivers, to provide them with individualized interventions. Spouses and offspring present different needs and therefore interventions should be different.
publishDate 2025
dc.date.none.fl_str_mv 2025
2025
2025
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/10366/164380
url http://hdl.handle.net/10366/164380
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.rights.none.fl_str_mv Attribution-NoDerivatives 4.0 Internacional
http://creativecommons.org/licenses/by-nd/4.0/
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Attribution-NoDerivatives 4.0 Internacional
http://creativecommons.org/licenses/by-nd/4.0/
eu_rights_str_mv openAccess
dc.publisher.none.fl_str_mv SpringerOpen
publisher.none.fl_str_mv SpringerOpen
dc.source.none.fl_str_mv reponame:GREDOS. Repositorio Institucional de la Universidad de Salamanca
instname:Universidad de Salamanca (USAL)
instname_str Universidad de Salamanca (USAL)
reponame_str GREDOS. Repositorio Institucional de la Universidad de Salamanca
collection GREDOS. Repositorio Institucional de la Universidad de Salamanca
repository.name.fl_str_mv
repository.mail.fl_str_mv
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spelling Towards a comprehensive psychosocial profile of the family caregiver of people with dementia: Guidelines for interventionJiménez García Tizón, SaraNavarro-Prados, Ana BelénBueno Martínez, María BelénCareDementiaFamily caregiverProfilePsychoeducational interventionCuidadoDemenciaCuidador familiarPerfilIntervención psicoeducativa61 Psicología6103.01, 3212 Salud Pública[EN]Background The profile of caregivers focuses on socio-demographic variables (age, gender, kinship, and educational level). However, buffer variables (e.g., dysfunctional thoughts) and indicators of the impacts of caregiving (e.g., stress) are often overlooked. Objective The study aims to offer a comprehensive view of the profile of the family caregiver of people with dementia by considering aspects contemplated in theoretical explanatory models of care. Methods It was based on a cross-sectional design. Socio-demographic and care-related characteristics and variables of the consequences of caregiving and related buffers were evaluated for 40 family caregivers of people with dementia. The Short form of Social Problem-Solving Inventory-Revised (SPSI-R-25), the Leisure Time Satisfaction Survey (LTS), the Revised Scale for Caregiving Self-Efficacy (RSCSE), the Escala de Habilidades Sociales (EHS), the Psychosocial Support Questionnaire (PSQ), the Cuestionario de Pensamientos Disfuncionales (CPD), the Caregiver Burden Interview (CBI), the Center for Epidemiologic Studies-Depression Scale (CES-D), the Perceived Stress Scale (PSS) and the World Health Organization Quality of Life Assessment–AGE (WHOQOL-AGE) were utilized. Descriptions of the variables and contrast tests (chi-square tests, t-tests, and two-factor ANOVAs) were made and used to compare the differences according to gender and kinship. Results Family caregivers are women, typically around 60 years old, wives or daughters, married, with primary/secondary education, who spend long hours caring with little support. They presented a low level of social and problemsolving skills, received little social support, had low self-efficacy and quality of life, highly dysfunctional thoughts, overload, depressive symptomatology, and stress. Significant differences were found according to kinship in educational level, employment status, hours per day dedicated to care time, and contemplating placing the person in a nursing home. Significant differences by kinship were also found in self-efficacy for responding to disruptive behaviors, perceived social support, and stress. Spouses have lower levels of this type of self-efficacy and have higher levels of stress but perceive greater social support. Males have higher levels of dysfunctional thoughts. Conclusion This study facilitates the identification of the specific needs of caregivers, to provide them with individualized interventions. Spouses and offspring present different needs and therefore interventions should be different.[ES] Introducción: El perfil de los cuidadores suele centrarse en variables sociodemográficas (edad, género, parentesco y nivel educativo). Sin embargo, a menudo se pasan por alto las variables amortiguadoras (p. ej., pensamientos disfuncionales) e indicadores del impacto del cuidado (p. ej., estrés). Objetivo: El estudio pretende ofrecer una visión integral del perfil del cuidador familiar de personas con demencia, considerando aspectos contemplados en los modelos teóricos explicativos del cuidado. Métodos: Se basó en un diseño transversal. Se evaluaron las características sociodemográficas y relacionadas con el cuidado, así como las variables de las consecuencias del cuidado y sus amortiguadores asociados en 40 cuidadores familiares de personas con demencia. Se utilizaron la forma abreviada del Inventario Revisado de Resolución de Problemas Sociales (SPSI-R-25), la Encuesta de Satisfacción con el Tiempo de Ocio (LTS), la Escala Revisada de Autoeficacia del Cuidador (RSCSE), la Escala de Habilidades Sociales (EHS), el Cuestionario de Apoyo Psicosocial (PSQ), el Cuestionario de Pensamientos Disfuncionales (CPD), la Entrevista de Carga del Cuidador (CBI), la Escala de Depresión del Centro de Estudios Epidemiológicos (CES-D), la Escala de Estrés Percibido (PSS) y la Evaluación de la Calidad de Vida de la Organización Mundial de la Salud–AGE (WHOQOL-AGE). Se realizaron descripciones de las variables y pruebas de contraste (chi-cuadrado, pruebas t y ANOVAs de dos factores) para comparar las diferencias según el género y el parentesco. Resultados: Los cuidadores familiares son mujeres, típicamente de unos 60 años, esposas o hijas, casadas, con educación primaria/secundaria, que pasan largas horas cuidando con poco apoyo. Presentaron un bajo nivel de habilidades sociales y de resolución de problemas, recibieron poco apoyo social, tuvieron baja autoeficacia y calidad de vida, pensamientos altamente disfuncionales, sobrecarga, sintomatología depresiva y estrés. Se encontraron diferencias significativas según el parentesco en el nivel educativo, la situación laboral, las horas diarias dedicadas al cuidado y la consideración de institucionalizar a la persona en una residencia. También se hallaron diferencias significativas por parentesco en la autoeficacia para responder a conductas disruptivas, el apoyo social percibido y el estrés. Los cónyuges tienen niveles más bajos de este tipo de autoeficacia y niveles más altos de estrés, pero perciben un mayor apoyo social. Los varones presentan niveles más altos de pensamientos disfuncionales. Conclusión: Este estudio facilita la identificación de las necesidades específicas de los cuidadores para proporcionarles intervenciones individualizadas. Los cónyuges y los hijos presentan necesidades diferentes y, por lo tanto, las intervenciones deberían ser distintasSpringerOpen202520252025info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttp://hdl.handle.net/10366/164380reponame:GREDOS. Repositorio Institucional de la Universidad de Salamancainstname:Universidad de Salamanca (USAL)InglésAttribution-NoDerivatives 4.0 Internacionalhttp://creativecommons.org/licenses/by-nd/4.0/info:eu-repo/semantics/openAccessoai:gredos.usal.es:10366/1643802026-06-07T06:28:51Z
score 15.812429

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