Recommendations and quality criteria to improve the early diagnosis of primary biliary cholangitis

Objective: The study aimed to establish recommendations and quality criteria to enhance the healthcare process of PBC. Patients and methods: It was conducted using qualitative techniques, preceded by a literature review. A consensus conference involving five specialists in the field was held, follow...

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Bibliographic Details
Authors: Díaz-González Á, Fontanillas N, Gil-Hernández E, Guilabert M, Londoño MC, Noguerol M, Escanilla FP, Mira JJ, Santiñá M
Format: article
Status:Published version
Publication Date:2024
Country:España
Institution:Fundación para el Fomento de la Investigación Sanitaria y Biomédica de la Comunitat Valenciana (FISABIO)
Repository:r-FISABIO. Repositorio Institucional de Producción Científica
OAI Identifier:oai:fisabio.fundanetsuite.com:p16282
Online Access:https://fisabio.portalinvestigacion.com/publicaciones/16282
Access Level:Open access
Keyword:Primary biliary cholangitis
Early diagnosis
Quality criteria
Indicators
Description
Summary:Objective: The study aimed to establish recommendations and quality criteria to enhance the healthcare process of PBC. Patients and methods: It was conducted using qualitative techniques, preceded by a literature review. A consensus conference involving five specialists in the field was held, followed by a Delphi process developed in two waves, in which 30 specialist physicians in family and community medicine, digestive system and internal medicine were invited to participate. Results: Seven recommendations and 15 sets of quality criteria, indicators and standards were obtained. Those with the highest consensus were << Know the impact on the patient's quality of life. Consider their point of view and agree on recommendations and care>> and << Evaluate possible fibrosis at the time of diagnosis and during PBC follow-up, assessing the evolution of factors associated with poor disease prognosis: noninvasive fibrosis (elastography > 2.1 kPa/year), GGT, Conclusions: The implementation of the consensus recommendations and criteria would provide better patient care. The need for multidisciplinary follow-up and an increased role of primary care is emphasized. (c) 2023 The Authors. Published by Elsevier Espana, S.L.U. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).