"Times of war and time of uncertain peace": narratives of parents of childhood cancer survivors

Objective: to analyze the meaning attributed by parents to the extended and permanent survival of childhood cancer. Method: qualitative narrative inquiry, developed with parents of adolescents and young adults who survived childhood cancer. Recruitment and data collection involved virtual and in-per...

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Detalhes bibliográficos
Autores: Neris, Rhyquelle Rhibna, Leite, Ana Carolina Andrade Biaggi, Papathanassoglou, Elizabeth, García Vivar, Cristina, Souza, Juliana de, Nascimento, Lucila
Formato: artículo
Estado:Versión publicada
Fecha de publicación:2024
País:España
Recursos:Universidad Pública de Navarra
Repositorio:Academica-e. Repositorio Institucional de la Universidad Pública de Navarra
OAI Identifier:oai:academica-e.unavarra.es:2454/52014
Acesso em linha:https://hdl.handle.net/2454/52014
Access Level:acceso abierto
Palavra-chave:Survivors
Neoplasms
Child
Adolescent
Parents
Qualitative research
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spelling "Times of war and time of uncertain peace": narratives of parents of childhood cancer survivorsNeris, Rhyquelle RhibnaLeite, Ana Carolina Andrade BiaggiPapathanassoglou, ElizabethGarcía Vivar, CristinaSouza, Juliana deNascimento, LucilaSurvivorsNeoplasmsChildAdolescentParentsQualitative researchObjective: to analyze the meaning attributed by parents to the extended and permanent survival of childhood cancer. Method: qualitative narrative inquiry, developed with parents of adolescents and young adults who survived childhood cancer. Recruitment and data collection involved virtual and in-person approaches. The data were collected through semi-structured interviews. Data were analyzed according to reflective thematic analysis. Results: a total of ten parents were included in the study. Two thematic narrative syntheses were constructed: 'Times of war'; and 'Time of uncertain peace', with their respective sub-themes. The cancer diagnosis marks the beginning of times of war in the parents¿ lives. They experience cancer treatment as 'highs and lows' with potential threats to their children¿s lives. After that, 'Time of uncertain peace' are reached, and the balance of the family unit is reestablished. However, the fear of recurrence makes the family peace uncertain, and its maintenance requires constant vigilance and attention to the signs and symptoms of a possible new battle. Conclusion: the results highlight the experience of being a parent of a childhood cancer survivor and can be applied to develop models of care centered on the survivors' family.This study was financed in part by the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES) - Finance Code 001, Brazil, and supported by Conselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq), Grant #200580/2022-1, Brazil.Universidad de São Paulo. Escola de Enfermagem de Riberirão PretoCiencias de la SaludOsasun Zientziak2024info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://hdl.handle.net/2454/52014reponame:Academica-e. Repositorio Institucional de la Universidad Pública de Navarrainstname:Universidad Pública de NavarraInglés© 2024 Revista Latino-Americana de Enfermagem. This is an Open Access article distributed under the terms of the Creative Commons (CC BY)https://creativecommons.org/licenses/by/4.0/info:eu-repo/semantics/openAccessoai:academica-e.unavarra.es:2454/520142026-06-17T12:41:47Z
dc.title.none.fl_str_mv "Times of war and time of uncertain peace": narratives of parents of childhood cancer survivors
title "Times of war and time of uncertain peace": narratives of parents of childhood cancer survivors
spellingShingle "Times of war and time of uncertain peace": narratives of parents of childhood cancer survivors
Neris, Rhyquelle Rhibna
Survivors
Neoplasms
Child
Adolescent
Parents
Qualitative research
title_short "Times of war and time of uncertain peace": narratives of parents of childhood cancer survivors
title_full "Times of war and time of uncertain peace": narratives of parents of childhood cancer survivors
title_fullStr "Times of war and time of uncertain peace": narratives of parents of childhood cancer survivors
title_full_unstemmed "Times of war and time of uncertain peace": narratives of parents of childhood cancer survivors
title_sort "Times of war and time of uncertain peace": narratives of parents of childhood cancer survivors
dc.creator.none.fl_str_mv Neris, Rhyquelle Rhibna
Leite, Ana Carolina Andrade Biaggi
Papathanassoglou, Elizabeth
García Vivar, Cristina
Souza, Juliana de
Nascimento, Lucila
author Neris, Rhyquelle Rhibna
author_facet Neris, Rhyquelle Rhibna
Leite, Ana Carolina Andrade Biaggi
Papathanassoglou, Elizabeth
García Vivar, Cristina
Souza, Juliana de
Nascimento, Lucila
author_role author
author2 Leite, Ana Carolina Andrade Biaggi
Papathanassoglou, Elizabeth
García Vivar, Cristina
Souza, Juliana de
Nascimento, Lucila
author2_role author
author
author
author
author
dc.contributor.none.fl_str_mv Ciencias de la Salud
Osasun Zientziak
dc.subject.none.fl_str_mv Survivors
Neoplasms
Child
Adolescent
Parents
Qualitative research
topic Survivors
Neoplasms
Child
Adolescent
Parents
Qualitative research
description Objective: to analyze the meaning attributed by parents to the extended and permanent survival of childhood cancer. Method: qualitative narrative inquiry, developed with parents of adolescents and young adults who survived childhood cancer. Recruitment and data collection involved virtual and in-person approaches. The data were collected through semi-structured interviews. Data were analyzed according to reflective thematic analysis. Results: a total of ten parents were included in the study. Two thematic narrative syntheses were constructed: 'Times of war'; and 'Time of uncertain peace', with their respective sub-themes. The cancer diagnosis marks the beginning of times of war in the parents¿ lives. They experience cancer treatment as 'highs and lows' with potential threats to their children¿s lives. After that, 'Time of uncertain peace' are reached, and the balance of the family unit is reestablished. However, the fear of recurrence makes the family peace uncertain, and its maintenance requires constant vigilance and attention to the signs and symptoms of a possible new battle. Conclusion: the results highlight the experience of being a parent of a childhood cancer survivor and can be applied to develop models of care centered on the survivors' family.
publishDate 2024
dc.date.none.fl_str_mv 2024
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://hdl.handle.net/2454/52014
url https://hdl.handle.net/2454/52014
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.rights.none.fl_str_mv https://creativecommons.org/licenses/by/4.0/
info:eu-repo/semantics/openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Universidad de São Paulo. Escola de Enfermagem de Riberirão Preto
publisher.none.fl_str_mv Universidad de São Paulo. Escola de Enfermagem de Riberirão Preto
dc.source.none.fl_str_mv reponame:Academica-e. Repositorio Institucional de la Universidad Pública de Navarra
instname:Universidad Pública de Navarra
instname_str Universidad Pública de Navarra
reponame_str Academica-e. Repositorio Institucional de la Universidad Pública de Navarra
collection Academica-e. Repositorio Institucional de la Universidad Pública de Navarra
repository.name.fl_str_mv
repository.mail.fl_str_mv
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