Nutrición parenteral domiciliaria en España, 2019: informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA.

Aim: to communicate the home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2019. Material and methods: a descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registr...

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Detalles Bibliográficos
Autores: Wanden-Berghe C, Virgili Casas N, Cuerda Compés C, Ramos Boluda E, Pereira Cunill JL, Maíz Jiménez MI, Burgos Peláez R, Gómez Candela C, Penacho Lázaro MÁ, de Luis DA, Zugasti Murillo A, Martínez Faedo C, Álvarez Hernández J, Campos Martín C, Rioja-Vázquez R, Irles Rocamora JA, Díaz Guardiola P, Sanz Paris A, Matía Martín P, Carabaña Pérez F, Martín Folgueras T, Chinchetru MªJ, Luengo Pérez LM, Martínez Costa C, Tejera Pérez C, Arraiza Irigoyen C, Sánchez-Vilar Burdiel O, García Delgado Y, Ponce González MÁ, Mauri Roca S, García Zafra MV, Germán Díaz M, Morán López JM, Molina Baeza B, Gonzalo Marín M, Sánchez Sánchez R, Calañas Continente A, Garde Orbaiz C, Martínez Olmos MÁ, Joaquín Ortiz C, Suárez Llanos JP, Forga Visa MT, Gil Martinez MªC, Carrera Santaliestra MJ, Padín López S, Lobo G, Apezetxea Celaya A, Ballesta Sánchez C, Bonada Sanjaume A, Cánovas Gaillemin B, Cardona Pera D, García Puente I, Higuera Pulgar I, Miserachs Aranda N, Del Olmo García MD, Palma Milla S, Parés Marimón RM, Pintor de la Maza B, Sánchez Martos EÁ
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2021
País:España
Institución:Institut d'Investigació i Innovació Parc Taulí (I3PT)
Repositorio:r-I3PT. Repositorio Institucional Producción Científica del Institut d'Investigació i Innovació Parc Taulí
OAI Identifier:oai:i3pt.fundanetsuite.com:p2148
Acceso en línea:https://i3pt.portalinvestigacion.com/publicaciones/2148
Access Level:acceso abierto
Palabra clave:Nutrición parenteral domiciliaria. Nutrición parenteral. Soporte nutricional. Cuidados domiciliarios. Registros. Epidemiología.
Descripción
Sumario:Aim: to communicate the home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2019. Material and methods: a descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1 to December 31, 2019. Results: a total of 283 patients (51.9 % women), 31 children, and 252 adults from 47 Spanish hospitals were registered, which represents a prevalence rate of 6.01 patients per million inhabitants for year 2019. The most frequent diagnosis in adults was "palliative oncological" and "others" (21.0 %). In children, it was Hirschsprung's disease together with necrotizing enterocolitis, alterations in intestinal motility, and chronic intestinal pseudo-obstruction, with 4 cases each (12.9 %). The first reason for the indication was short-bowel syndrome in both children (51.6 %) and adults (37.3 %). The most used type of catheter was tunnelled both in children (75.9 %) and in adults (40.8 %). Sixty-eight episodes ended, all in adults, and the most frequent cause was death (54.4 %); 38.2 % were switched to oral. Conclusions: the number of collaborating centers and professionals in the NADYA registry is increasing. The main indications and reasons for HPN termination remain stable.

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