Sleep disorders in children managed in the pediatric palliative care unit of a tertiary hospital

Introduction: In pediatric palliative care, 30% of patients suffer from cancer and the remaining 70% suffer mainly from neurologic, metabolic and genetic disorders. Sleep disorders affect 30% of healthy preschool children and up to 80% of neurologic patients, so these problems are likely to be commo...

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Detalhes bibliográficos
Autores: Belenguer, LM, Luna, AP, Carreño, MIL, Pons, TC, Vera, CV
Formato: artículo
Estado:Versión publicada
Fecha de publicación:2026
País:España
Recursos:INCLIVA
Repositorio:r-INCLIVA. Repositorio Institucional de Producción Científica de INCLIVA
OAI Identifier:oai:dnet:incliva_____::4ea943cfbee33ffdcbecfec7d86d1ff0
Acesso em linha:https://incliva.portalinvestigacion.com/publicaciones/20866
Access Level:acceso abierto
Palavra-chave:Sleep
Paediatric palliative care
Insomnia
Epilepsy
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spelling Sleep disorders in children managed in the pediatric palliative care unit of a tertiary hospitalBelenguer, LMLuna, APCarreño, MILPons, TCVera, CVSleepPaediatric palliative careInsomniaEpilepsyIntroduction: In pediatric palliative care, 30% of patients suffer from cancer and the remaining 70% suffer mainly from neurologic, metabolic and genetic disorders. Sleep disorders affect 30% of healthy preschool children and up to 80% of neurologic patients, so these problems are likely to be common in PPC units. Addressing sleep quality is essential, as adequate rest improves the emotional and physical health of both children and their caregivers, thereby increasing their quality of life. Objective: To determine the prevalence and specific characteristics of sleep problems in patients managed by the PPC unit of a tertiary care hospital between March and August 2024. Material and methods: Quantitative, observational, and prospective study of patients receiving PPC at a tertiary care hospital. Sleep was assessed with instruments validated in the Spanish pediatric population (BISQ, SDSC and sleep diary). Results: The study included 23 patients, of who 86.95% had neurologic disease. The most common sleep disorders were chronic insomnia and circadian rhythm disorders, with an overall prevalence of 78.26%. Low ferritin levels and the need for respiratory support during sleep were associated with worse scores on the sleep scale (SDSC). Conclusions: Sleep disorders are highly prevalent in PPC, but validated scales and studies in large PPC samples are needed to improve their diagnosis and treatment and, consequently, the quality of life of patients and their families. (c) 2025 Asociacion Espanola de Pediatr & imath;a. Published by Elsevier Espana, S.L.U. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/ 4.0/).EDICIONES DOYMA S A2026info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttps://incliva.portalinvestigacion.com/publicaciones/20866ANALES DE PEDIATRIAISSN: 16954033ISSNe: 16959531reponame:r-INCLIVA. Repositorio Institucional de Producción Científica de INCLIVAinstname:INCLIVAEspañolinfo:eu-repo/semantics/openAccessoai:dnet:incliva_____::4ea943cfbee33ffdcbecfec7d86d1ff02026-06-07T16:35:31Z
dc.title.none.fl_str_mv Sleep disorders in children managed in the pediatric palliative care unit of a tertiary hospital
title Sleep disorders in children managed in the pediatric palliative care unit of a tertiary hospital
spellingShingle Sleep disorders in children managed in the pediatric palliative care unit of a tertiary hospital
Belenguer, LM
Sleep
Paediatric palliative care
Insomnia
Epilepsy
title_short Sleep disorders in children managed in the pediatric palliative care unit of a tertiary hospital
title_full Sleep disorders in children managed in the pediatric palliative care unit of a tertiary hospital
title_fullStr Sleep disorders in children managed in the pediatric palliative care unit of a tertiary hospital
title_full_unstemmed Sleep disorders in children managed in the pediatric palliative care unit of a tertiary hospital
title_sort Sleep disorders in children managed in the pediatric palliative care unit of a tertiary hospital
dc.creator.none.fl_str_mv Belenguer, LM
Luna, AP
Carreño, MIL
Pons, TC
Vera, CV
author Belenguer, LM
author_facet Belenguer, LM
Luna, AP
Carreño, MIL
Pons, TC
Vera, CV
author_role author
author2 Luna, AP
Carreño, MIL
Pons, TC
Vera, CV
author2_role author
author
author
author
dc.subject.none.fl_str_mv Sleep
Paediatric palliative care
Insomnia
Epilepsy
topic Sleep
Paediatric palliative care
Insomnia
Epilepsy
description Introduction: In pediatric palliative care, 30% of patients suffer from cancer and the remaining 70% suffer mainly from neurologic, metabolic and genetic disorders. Sleep disorders affect 30% of healthy preschool children and up to 80% of neurologic patients, so these problems are likely to be common in PPC units. Addressing sleep quality is essential, as adequate rest improves the emotional and physical health of both children and their caregivers, thereby increasing their quality of life. Objective: To determine the prevalence and specific characteristics of sleep problems in patients managed by the PPC unit of a tertiary care hospital between March and August 2024. Material and methods: Quantitative, observational, and prospective study of patients receiving PPC at a tertiary care hospital. Sleep was assessed with instruments validated in the Spanish pediatric population (BISQ, SDSC and sleep diary). Results: The study included 23 patients, of who 86.95% had neurologic disease. The most common sleep disorders were chronic insomnia and circadian rhythm disorders, with an overall prevalence of 78.26%. Low ferritin levels and the need for respiratory support during sleep were associated with worse scores on the sleep scale (SDSC). Conclusions: Sleep disorders are highly prevalent in PPC, but validated scales and studies in large PPC samples are needed to improve their diagnosis and treatment and, consequently, the quality of life of patients and their families. (c) 2025 Asociacion Espanola de Pediatr & imath;a. Published by Elsevier Espana, S.L.U. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/ 4.0/).
publishDate 2026
dc.date.none.fl_str_mv 2026
dc.type.none.fl_str_mv info:eu-repo/semantics/article
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dc.identifier.none.fl_str_mv https://incliva.portalinvestigacion.com/publicaciones/20866
url https://incliva.portalinvestigacion.com/publicaciones/20866
dc.language.none.fl_str_mv Español
language_invalid_str_mv Español
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.publisher.none.fl_str_mv EDICIONES DOYMA S A
publisher.none.fl_str_mv EDICIONES DOYMA S A
dc.source.none.fl_str_mv ANALES DE PEDIATRIA
ISSN: 16954033
ISSNe: 16959531
reponame:r-INCLIVA. Repositorio Institucional de Producción Científica de INCLIVA
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