Late-onset Pompe disease: what is the prevalence of limb-girdle muscular weakness presentation?

Pompe disease is an inherited disease caused by acid alpha-glucosidase (GAA) deficiency. A single center observational study aimed at assessing the prevalence of late-onset Pompe disease in a high-risk Brazilian population, using the dried blood spot test to detect GAA deficiency as a main screening...

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Detalhes bibliográficos
Autores: Lorenzoni, Paulo Jose, Kay, Claudia Suemi Kamoi, Higashi, Nadia Sugano, D'Almeida, Vania [UNIFESP], Werneck, Lineu Cesar, Scola, Rosana Herminia
Tipo de documento: artigo
Estado:Versão publicada
Data de publicação:2018
País:Brasil
Recursos:Universidade Federal de São Paulo (UNIFESP)
Repositório:Repositório Institucional da UNIFESP
Idioma:inglês
OAI Identifier:oai:repositorio.unifesp.br:11600/55671
Acesso em linha:http://dx.doi.org/10.1590/0004-282X20180018
https://repositorio.unifesp.br/handle/11600/55671
Access Level:Acceso aberto
Palavra-chave:glycogen storage disease type II
muscular weakness
muscle diseases
doença de depósito de glicogênio tipo II
debilidade muscular
doenças musculares
Descrição
Resumo:Pompe disease is an inherited disease caused by acid alpha-glucosidase (GAA) deficiency. A single center observational study aimed at assessing the prevalence of late-onset Pompe disease in a high-risk Brazilian population, using the dried blood spot test to detect GAA deficiency as a main screening tool. Dried blood spots were collected for GAA activity assay from 24 patients with "unexplained" limb-girdle muscular weakness without vacuolar myopathy in their muscle biopsy. Samples with reduced enzyme activity were also investigated for GAA gene mutations. Of the 24 patients with dried blood spots, one patient (4.2%) showed low GAA enzyme activity (NaG/AaGIA: 40.42