PARENTAL PERCEPTION OF SEXUALITY IN ADOLESCENTS AND YOUNG ADULTS WITH DOWN SYNDROME: A SCOPING REVIEW
Down Syndrome is the most prevalent genetic anomaly in humans, affecting 1 in every 800 births. In about 95% of cases, it is caused by a simple trisomy, while the remaining 5% result from translocation (3.5%) or mosaicism (1.5%). Among the rights that must be ensured for individuals with Down Syndro...
| Autores: | , , , , |
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| Tipo de recurso: | artículo |
| Estado: | Versión publicada |
| Fecha de publicación: | 2023 |
| País: | Brasil |
| Institución: | Sociedade Brasileira de Estudos em Sexualidade Humana (SBRASH) |
| Repositorio: | Revista Brasileira de Sexualidade Humana (Online) |
| Idioma: | portugués |
| OAI Identifier: | oai:ojs.rbsh.org.br:article/1123 |
| Acceso en línea: | https://www.rbsh.org.br/revista_sbrash/article/view/1123 |
| Access Level: | acceso abierto |
| Palabra clave: | Adolescente Educação Sexual Saúde Sexual Sexualidade Síndrome de Down Adolescent Sexual Education Sexual Health Sexuality Down Syndrome Educación Sexual Salud Sexual Sexualidad |
| Sumario: | Down Syndrome is the most prevalent genetic anomaly in humans, affecting 1 in every 800 births. In about 95% of cases, it is caused by a simple trisomy, while the remaining 5% result from translocation (3.5%) or mosaicism (1.5%). Among the rights that must be ensured for individuals with Down Syndrome are the rights to sexuality and sexual education, both recognized as human rights by the Universal Declaration of Human Rights. This study aimed to map the scientific literature on parental perception of the sexuality of adolescents and young adults with Down Syndrome. This review followed the methodological proposal of Arksey & O’Malley and The Joanna Briggs Institute Manual for Evidence Synthesis. The writing of this article adhered to the Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) Checklist. This research was based on the question: what are the understandings of parents and/or guardians regarding the sexuality of adolescents and young adults with Down Syndrome that are reported in the literature? The protocol was registered in the Open Science Framework ([Insert link]). Searches were conducted in BVS/Lilacs, Cochrane Library, Embase, Pubmed/Medline, Scielo, Scopus, and Web Of Science. Of the 391 articles found in the initial search, 8 were included in this review. The thematic analysis suggests two thematic axes: a) sexual education, and b) cultural aspects of sexuality. It was found that parents' perceptions regarding the sexuality of adolescents and young adults with Down Syndrome vary according to the level of information received and how this knowledge transforms reality. |
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