Aspects related to the caregiver burden of a child with Autism Spectrum Disorder: a literature review

Objective: to investigate existing research in the literature on aspects related to the caregiver burden of a child diagnosed with Autism Spectrum Disorder (APT), such as: support network, access to health services for follow-up with specialized professionals, financial support and housing. Methodol...

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Detalles Bibliográficos
Autores: Guckert, Suelen Bernardo, Arakawa-Belaunde, Aline Megumi
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2022
País:Brasil
Institución:Universidade Federal de Itajubá (UNIFEI)
Repositorio:Research, Society and Development
Idioma:portugués
OAI Identifier:oai:ojs.pkp.sfu.ca:article/28818
Acceso en línea:https://rsdjournal.org/index.php/rsd/article/view/28818
Access Level:acceso abierto
Palabra clave:Autism Spectrum Disorder
Caregivers
Child
Teaching.
Trastorno del espectro autista
Cuidadores
Niño
Enseñanza.
Transtorno do Espectro Autista
Cuidador
Criança
Ensino.
Descripción
Sumario:Objective: to investigate existing research in the literature on aspects related to the caregiver burden of a child diagnosed with Autism Spectrum Disorder (APT), such as: support network, access to health services for follow-up with specialized professionals, financial support and housing. Methodology: This is a literature review. The search for studies was carried out in eight databases, using the combination of the following descriptors: “Child”, “Autistic Spectrum Disorder” and “Caregiver”, as well as their respective synonyms in Portuguese, English and Spanish. Studies from the last 10 years were selected. Results: The caregivers are mainly female, with an average age of 42 years, more than half have some degree of training, this being higher education training or some other course. Caregivers have difficulties with the daily care of the child, financial difficulties and hardly have a support network. Conclusion: From the results obtained, it is observed that these caregivers are overloaded and need help, especially with regard to the care and needs of the child.