Right to health of the population with albinism: an academic training experience
Objective: to report on the experience of conducting a training workshop on the right to health of persons with albinism. Methodology: this is a descriptive study, with a qualitative approach, of the experience report type, about a training workshop aimed at academics and health professionals from t...
| Autores: | , , , , |
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| Tipo de recurso: | artículo |
| Estado: | Versión publicada |
| Fecha de publicación: | 2025 |
| País: | Brasil |
| Institución: | Fundação Oswaldo Cruz (FIOCRUZ) |
| Repositorio: | Cadernos Ibero-Americanos de Direito Sanitário (Online) |
| Idioma: | portugués inglés |
| OAI Identifier: | oai:ojs.cadernos.prodisa.fiocruz.br:article/1344 |
| Acceso en línea: | https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/1344 |
| Access Level: | acceso abierto |
| Palabra clave: | Albinismo Saúde das Minorias Étnicas Direito à Saúde Albinism Health of Ethnic Minorities Right to Health Salud de las Minorías Étnicas Derecho a la Salud |
| Sumario: | Objective: to report on the experience of conducting a training workshop on the right to health of persons with albinism. Methodology: this is a descriptive study, with a qualitative approach, of the experience report type, about a training workshop aimed at academics and health professionals from the Nursing, Medicine, Psychology and Social Work courses, developed by the Right to Health and the Brazilian Unified Health System Extension Project. Results: the workshop was divided into three work stations, which looked at breaking down stigmas related to albinism, the biopsychosocial aspects of albinism and health care policies for this population, with an emphasis on the National Policy for Comprehensive Health Care for People with Albinism. The discussion was guided by a self-assessment form on the participants' knowledge and attitudes towards albinism. Thus, through the use of an active teaching methodology and the collaboration of people who are part of the population in question, it is possible to contribute to the training of the professionals/academics involved by making them question the invisibilization of issues related to the individuality of people with albinism as well as their particularities in terms of health demands. Conclusion: in view of the lack of a biopsychosocial approach to the health of the population with albinism during undergraduate courses in the health area, the workshop was an important tool for breaking the cycle of invisibilization and denial of the right to health of people with albinism. Submitted: 02/25/25| Revision: 04/21/25| Approved: 04/21/25 |
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