Social representations of the family caregiver about palliative care in terminal patient / Representações sociais do cuidador familiar sobre cuidados paliativos em paciente terminal

Objective: to analyze the social representations of family caregivers about palliative care in patients with serious, progressive disease that threatens the continuity of their lives. Method: the study was descriptive, using a qualitative approach. For the interpretation of the results, the Theory o...

Full description

Bibliographic Details
Authors: da Silva, Silvio Éder Dias, de Oliveira, Márcia Aparecida Ferreira, Ferreira, Jaqueline Alves, dos Santos, Jeferson Araújo, Rodrigues, Diego Pereira, Rodrigues, Diana Madeira
Format: article
Status:Published version
Publication Date:2024
Country:Brasil
Institution:Universidade Federal do Estado do Rio de Janeiro (UNIRIO)
Repository:Revista de Pesquisa: Cuidado é Fundamental Online
Language:Portuguese
OAI Identifier:oai:ojs.seer.unirio.br:article/11785
Online Access:https://seer.unirio.br/cuidadofundamental/article/view/11785
Access Level:Open access
Keyword:oncology nursing
Nursing
palliative care
Enfermería
enfermería oncológica
Cuidados paliativos
Enfermagem
Enfermagem oncológica.
Description
Summary:Objective: to analyze the social representations of family caregivers about palliative care in patients with serious, progressive disease that threatens the continuity of their lives. Method: the study was descriptive, using a qualitative approach. For the interpretation of the results, the Theory of Social Representations, created by Serge Moscovici and Denise Jodelet, was used as a theoretical contribution. The research was carried out with 30 family caregivers of patients with end-of-life cancer. Data collection was carried out through semi-structured interviews and the thematic analysis technique. Results: after analyzing the data, three categories emerged: common sense and cancer; palliative care, the patient and caregivers and caregivers and their social representation. Final considerations: the social representations of the family caregiver made it possible to identify the true extent of daily issues in the professional routine.