Vulnerability of families with children with intestinal stomas

Intestinal stomas cause transformations in the body and create specific and continuous needs for care that imply in hospitalization and surgeries. In this context, we applied the concept of family vulnerability in order to identify the vulnerability of the family living with a child who has intestin...

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Detalles Bibliográficos
Autores: Zacarin, Clara Ferraz Lazarini, Alvarenga, Willyane de Andrade, de Souza, Renata Olzon Dionysio, Borges, Daianne Cibele de Souza, Dupas, Giselle
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2014
País:Brasil
Institución:Universidade Federal de Goiás (UFG)
Repositorio:Revista Eletrônica de Enfermagem
Idioma:portugués
OAI Identifier:oai:ojs.revistas.ufg.br:article/26639
Acceso en línea:https://revistas.ufg.br/fen/article/view/26639
Access Level:acceso abierto
Palabra clave:Surgical Stomas
Child
Family
Pediatric Nursing
Estomas Quirúrgicos
Niño
Familia
Enfermería Pediátrica
Estomas Cirúrgicos
Criança
Família
Enfermagem Pediátrica
Descripción
Sumario:Intestinal stomas cause transformations in the body and create specific and continuous needs for care that imply in hospitalization and surgeries. In this context, we applied the concept of family vulnerability in order to identify the vulnerability of the family living with a child who has intestinal stoma. It is a qualitative study which interviewed the mothers of children with this chronic condition. We used narrative analysis based on the concept of family vulnerability. The results display that the family has gone through previous noteworthy experiences associated with the child’s condition. The family cares for the child on their own and seeks ways to control the situation and regain autonomy, hoping for stoma reversal. Based on the concept of vulnerability, we observed that these families can be considered vulnerable, for they experience threats to their autonomy, but are moved by the hope of reversal and intestinal tract reconstruction.doi: 10.5216/ree.v16i2.26639.